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Author Topic: Question for the Ladies on PD Cycler  (Read 2661 times)
peleroja
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« on: August 25, 2008, 07:33:06 AM »

Almost immediately after I went on the cycler in April, I got a bladder infection.  I hadn't had one of those in 11 years!  Now, I have this frequent feeling of needing to urinate (not as constant or insistent as a bladder infection), but, of course, there's nothing there to go as I only go about a tablespoon when I wake up in the morning.  To me, it seems like the phantom pain that folks get when a limb is severed.  It's as if the bladder is desperately trying to do its job, even though the kidneys are no longer supplying it. 

So, have any of you PD cycler ladies experienced this?  Did it go away?  If no, is there anything I can do?  I'm seriously thinking of asking my doctor for Detrol LA, which is supposed to help with 'overactive bladder."
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jbeany
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« Reply #1 on: August 25, 2008, 07:17:01 PM »

I still get that once in a while - I'm on hemo, though, not a cycler.  I've noticed it especially at times when I would have normally gone back when I had working kidneys - just before I leave for a car ride, or just before I'm headed in to a doctor's appointment.  I know I don't have to go, but the feeling is there.

I just figured it was in my head, not my kidneys!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

KICKSTART
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« Reply #2 on: August 26, 2008, 03:13:43 AM »

Count me in !!! and im on PD . I still pass quite a lot but i also get that 'feeling' and have been checked for infection. I think i might hold the record? as one night i got up 17 times!!!! with that feeling! My doctor is also considering trying to find a medication for a 'sensitive bladder'.
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Kini
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« Reply #3 on: August 27, 2008, 05:04:24 PM »

Peleroga, my daughter is 5 yrs on PD. Since is mildly delayed it's hard for even me to tell at times but after 26 yrs I know her well and her reactions to all. She after 5 yrs still urinates about 800 cc's during the night, I have a potty chair in her room so I know. She works during the day but I know she gets 100 cc or better out. There are times when it's less or more. but she has the URGE to go, when we are out she will seek the rest room out so she has urge. I have folllowed her to the rest rooms ( if pubic for sanitation reason  :o ) and I know she passes urine so she had the feeling. All that urine and it does not matter anyhow  :grouphug; my best to you.
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Mother of daughter on PD dialysis. Transplanted 1991, dialysis June 2003, transplanted 2004 this transplant never took, still on PD and waiting 5 yrs. and when the gift of life is once again never shall we be tied down, look out Hawaii we are coming back !! it's my daughter's dream.
G-Ma
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« Reply #4 on: August 27, 2008, 07:02:27 PM »

My bladder still "wants to" but I just can't.
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
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03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
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Aug 5, 08, trained NxStage and Home on 9/3/2008.
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Back to RAI-Latrobe In Center. No home hemo at this time.
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RobinM
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« Reply #5 on: August 31, 2008, 03:20:55 PM »


I'm on home hemo.  I haven't had a bladder infection for years, but when I notice the symptoms, I drink half a cup of straight cranberry juice for a few days.  Yeah, I know it tastes nasty, but it works!

Robin



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