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Beth36
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« on: September 04, 2007, 11:16:35 AM »
Hello!

I'm new here and am not on dialysis but my mom will be soon.  She is in ESRD and current function is 12%.  I am also in the process (along with my husband and sister) of being tested to donate a kidney to her hopefully soon.  She has a PRA of 76 and we just had blood drawn for our flow crossmatch.  We got positive crossmatches and now need to see how much plasmapheresis she will need.  However, I am nervous because I was told if our Tcell and Bcell numbers are over 450, she won't be able to get a transplant from that particular person.  So, I am hoping that at least one of us will be under 450.  That just makes me so nervous and every time I have gotten blood drawn, my BP is up and I normally have low BP...anyway, I have been reading here for a while since deciding to join and just want to say all of you are so supportive of each other and this just seems like such a wonderful place.  I'm sure once my mom goes on dialysis, I will have a million questions and I hope I don't drive anybody nuts in the process!  Thank you  :)

Beth
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Mom had positive crossmatch transplant at Mayo Clinic on 6/13/08!!
Hawkeye
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« Reply #1 on: September 04, 2007, 11:45:38 AM »
Hello and  :welcomesign;
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It's not easy being green.
MyssAnne
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« Reply #2 on: September 04, 2007, 11:48:27 AM »
Welcome!!!! :welcomesign; :welcomesign; Don't worry about driving us nuts....we have GoofyNina for that!!!! You'll have to settle for enjoying yourself! DO ask all the questions you can think of, someone will know the answer, or where to go.




EDITED: Fixed smiley error - okarol/moderator
« Last Edit: September 04, 2007, 11:58:56 AM by okarol » Logged
Laurie
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May 13, 2008
« Reply #3 on: September 04, 2007, 11:52:39 AM »
 :welcomesign; Glad you found this site.
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Beth36
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« Reply #4 on: September 04, 2007, 11:55:38 AM »
Thank you so much!  I really do appreciate the welcome and the offers of answers.  I have a tendency to ask a LOT of questions...the transplant and donor coordinators loooooove me....I just like to know what to expect and need to help my mom.  She and my father live in a different state and since I am the oldest, I feel like I need to be her advocate and if something isn't gong right, I need to know.  But, we aren't there yet...she will soon be on dialysis, though.  If we can donate to her, it won't be until the beginning of the year because she has to finish up her Hep B vaccine and that takes a few months.  Anyway, thank you very much and I will be asking questions!


Beth
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Mom had positive crossmatch transplant at Mayo Clinic on 6/13/08!!
goofynina
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« Reply #5 on: September 04, 2007, 11:58:15 AM »
Hi Beth,  Welcome to ihatedialysis.com.   I hope everything with the blood testing turns out the way you want it to and your mom is able to receive a kidney and not have to go on dialysis, but please feel free to come here and ask as many questions as you'd like.  If at anytime you need help with anything, please do not hesitate to ask, we are here to help you any way we can.  Looking forward to hearing more from you  :2thumbsup;


Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Joe Paul
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« Reply #6 on: September 04, 2007, 11:59:13 AM »
Welcome Beth, good to have you aboard.
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Transplant Jan. 8, 2010
Roxy
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« Reply #7 on: September 04, 2007, 02:07:42 PM »
  :welcomesign;
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Beth36
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« Reply #8 on: September 04, 2007, 03:00:24 PM »
Againl thank you for the warm welcome!  I have already gotten some knowledge from this site and it's great! 


Beth
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Mom had positive crossmatch transplant at Mayo Clinic on 6/13/08!!
Ohio Buckeye
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« Reply #9 on: September 04, 2007, 04:46:46 PM »
Hi Beth

Welcome to the IHD Family!
You have come to the right place for info, support and friends.
Your Mom is fortunate to have you for an advocate.
Hope things work out so she can get a transplant.
 
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If I must do this to live, I must strive to live
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angela515
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« Reply #10 on: September 04, 2007, 04:54:32 PM »
 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Romona
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« Reply #11 on: September 04, 2007, 07:13:42 PM »
Hi Beth, you keep sticking up for Mom. This process is a wild ride! Hold on tight.
 :welcomesign;
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Beth36
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« Reply #12 on: September 04, 2007, 07:18:54 PM »
Thanks y'all!  If anything, I have learned so far that you really need to be on top of your game!  I'm always online trying to stay one step ahead of the next hurdle.  This site has been a huge godsend to me and I have only been here a day!  Lots of wonderful people here and I hope that I can help someone as much as you all have helped me already!  Thanks again for the wonderful welcome!!  Look forward to being an active and helpful member of the group!  :)

Beth
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Mom had positive crossmatch transplant at Mayo Clinic on 6/13/08!!
Wattle
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« Reply #13 on: September 04, 2007, 08:31:40 PM »
 


:waving;  Welcome Beth
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
silverhead
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« Reply #14 on: September 04, 2007, 09:23:51 PM »
I think it is fantastic that you are taking on the advocate role for your Mom, I know from my experience with my Wifes Kidney failure that she needs someone looking out for her best interests, she is pretty overwhelmed with her own physical challenges that learning is difficult without someones help, She never makes decisions concerning her care without my input and the tremendous help we find on this forum in obtaining answers that are really hard to get from the "professionals" we have to deal with almost daily. Just remember there is no such thing a a dumb question, we are all in this together........
Tom
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Do not argue with an idiot. He will drag you down to his level and beat you with experience.
keefer51
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« Reply #15 on: September 05, 2007, 02:40:40 AM »
Welcome Beth. I hope you will find the information you need here.
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #16 on: September 05, 2007, 05:49:13 AM »
Welcome to our community!  I know that you are not going to regret joining us.  This is the place to be when you or your loved ones are facing this renal challenge.  I just love it when people join us because of someone they care about.  There is so much information here, and all of it is usable, because it is not just theory - it is from people who are actually living this situation.  So read and read, and post and post and ask and ask.  Just take advantage of all this site has to offer.



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
paris
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« Reply #17 on: September 05, 2007, 06:39:30 AM »
  :welcomesign;  Beth, so glad you found us.  This group of people will help you through this journey, walking by your side.  Your Mom is fortunate to have you helping her.
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Redbomb
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« Reply #18 on: September 06, 2007, 04:12:03 PM »
 :welcomesign; :welcomesign; :welcomesign;
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brenda
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« Reply #19 on: September 06, 2007, 08:28:43 PM »
Welcome Beth.   :beer1;
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Life is what happens while your making other plans.
kitkatz
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« Reply #20 on: September 06, 2007, 09:24:29 PM »
I firmly believe the answers ar eout there.  I love this site and welcome you to it.



kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
del
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del and willowtreewren meet
« Reply #21 on: September 07, 2007, 05:14:32 PM »
Never feel bad about asking questions because lots of times they won't tell you things.  We have asked lots and done a lot of research. I find you have to educate yourself on kidney disease.
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Don't take your organs to heaven.  Heaven knows we need them here.
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