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Trudy
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Hi
« on: August 30, 2007, 04:13:23 PM »
My name is Trudy and I have been on dialysis for 1 1/2years. (pd) I have polycystic kidney disease.  Both of my parents had it and died at an early age.  I have two children, a son and daughter, so far my daughter has the disease and also one of my 3 grandchildren has it.  My son would like to give me a kidney but I am having problems about it because I think my daughter or granddaughter will need it some day.  I am 55 and my daughter is only 35  and my granddaughter is just 11.  We do not have many family members to choose from.  I found out today that they are going to remove at least one of my kidneys because they are getting too big.  I really glad I heard about this site.  It will be nice to talk to others who are going thru similar things. 
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lola
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I can fly!!!
« Reply #1 on: August 30, 2007, 04:15:10 PM »
 :welcomesign;
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www.caringbridge.org/visit/ottomachado
Laurie
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May 13, 2008
« Reply #2 on: August 30, 2007, 04:20:35 PM »
 :welcomesign; Trudy. Glad you found this site.
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
charee
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« Reply #3 on: August 30, 2007, 04:25:10 PM »
hey Trudy :welcomesign;  i have pkd also and have been on dialysis for 5 months and are also getting a kidney removed later this year.  this a great site glad you found it.
 
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
Razman
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« Reply #4 on: August 30, 2007, 04:58:15 PM »
Welcome aboard !   Please take some time to look around and I think that you will find answers to a lot your questions.  :canadaflag;
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Romona
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« Reply #5 on: August 30, 2007, 05:09:56 PM »
Hi Trudy.  :welcomesign;


You'll love it here.
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angela515
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i am awesome.
« Reply #6 on: August 30, 2007, 06:09:31 PM »
 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Sluff
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« Reply #7 on: August 30, 2007, 06:24:52 PM »
Welcome Trudy,

I think along the same lines as you. Thanks for taking an interest in Ihatedialysis.com. You will definitely find like minded people here.
There is lots to read and absorb. Take your time and feel free to ask questions.

Sluff/ Admin
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kitkatz
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« Reply #8 on: August 30, 2007, 07:46:48 PM »
Welcome abaord. Join right in on the discussions.  There is a home diaiysis section and even an arcade, as well as all kinds of thoughts and discussions on dialysis.





kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Joe Paul
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« Reply #9 on: August 30, 2007, 11:03:33 PM »
Welcome Trudy, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
bolta72
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my best friend
« Reply #10 on: August 31, 2007, 04:48:15 AM »
 :welcomesign;
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gotta do what I gotta do.. 2 yrs in ctr hemo
Hawkeye
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« Reply #11 on: August 31, 2007, 06:54:10 AM »
Hello and  :welcomesign;
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okarol
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« Reply #12 on: August 31, 2007, 09:29:59 AM »
 :waving; Hi Trudy,
I think it's a good idea to explore donor options - there's a chance you will meet a donor if you tell enough people your story. My 2 sisters and my brother all have PKD, so none of their children offered to get tested when my daughter needed a kidney (I didn't inherit PKD, she has a faulty bladder) as they are apparently "saving" themselves to donate to their parents. I am assuming that because we never had a discussion until after Jenna got a transplant from an altruistic donor. Anyway, my point is that if your son is willing, you can have him tested. He might not be a match, but at least you'll know, and in the meantime you can keep an open mind to finding another donor. I hope the nephrectomy goes well and that you are feeling more comfortable afterwards. Best of luck to you!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
goofynina
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He is the love of my life......
« Reply #13 on: August 31, 2007, 11:33:25 PM »
Hi Trudy, Welcome to ihatedialysis.com.  Please feel free to read into the posts and do not hesitate to add any questions, comments and/or concerns of your own.  If there is something in particular you are looking for and cannot find, just ask, we are here to help you any way we can.  We would love it if your daughter joined as well.  :2thumbsup;  Looking forward to hearing more from you  :cuddle;



Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Bajanne
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« Reply #14 on: September 01, 2007, 01:58:24 AM »
Welcome to our community, Trudy.  I am so glad that you found us.  You are going to find that this site is one of the tools you can use to help you in this challenge.  There is lots and lots to read here, so get going!  But don't just read.  You must also post and let us know what you are going through.  Feel free to vent and rage when you need to.  Here there are people who understand exactly what you are going through.
Please take advantage of all this site has to offer.  This is not just a message board; we have become a real family.  Welcome again.  Here is a hug from all of us.  :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
paris
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« Reply #15 on: September 01, 2007, 11:23:25 AM »
Welcome Trudy. Glad you found us. This is a great site with lots of caring people in all different stages of kidney disease.  As Bajanne said, we have become a family and gather together for support, information and humor----sometimes you just have  to laugh!   :welcomesign;  Looking forward to hearing more from you.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
EMMA
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« Reply #16 on: September 01, 2007, 11:29:18 AM »
lovely to meet you...i just joined this site and already the members have been caring and considerate...you will find inspiration, education and hope :canadaflag;
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Lori1851
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This is me Lori , Dustin's mom
« Reply #17 on: September 02, 2007, 07:51:44 AM »
 :waving; Hi Trudy,
You have found a wonderful site and people with lots of knowledge. 
Lori Indiana/ son Dustin now "22" FSGS and on dialysis
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keefer51
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« Reply #18 on: September 03, 2007, 01:39:39 AM »
 :welcomesign; Trudy.
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
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