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Author Topic: Hi! I'm Janet  (Read 4249 times)
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« on: August 17, 2007, 01:02:25 PM »

Hi! I'm Janet. I'm 30 and have been a type 1 diabetic for 24 years now. I was first diagnosed with problems 2 years ago when my creat went from .8 to 2.1 within a month. Since then, my kidney function declined to 19% 6 months ago. It is still declining, but a little slower pace. I'm not quite on dialysis yet, but I've doing lots of research so I can be prepared and this site looked great! There seems to be more knowledge here and support than at any of the doctor's offices I go to! My doctors kind of pass me off to one another and pretty much just blow off everything I tell them.

I just got married to the most wonderful man in the world 3 months ago (he loves me despite my failing kidneys!  :clap; ). As I said before, I am 30, I am going back to school for graphic design (more for information refreshment than anything), we have no children, but 2 great dogs and we live in Ohio in the US (I spent 27 years of my life in the Baltimore/Washington, DC area, so I'm really an East Coast city girl at heart tho).

I'm kind of new to message boards, about a week in fact, so I'm still getting used to posting in general, so please bear with me!
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Romona
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« Reply #1 on: August 17, 2007, 01:14:35 PM »

Hi! This is great place to be.
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goofynina
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He is the love of my life......

« Reply #2 on: August 17, 2007, 01:35:19 PM »

Hi Janet,  Welcome to ihatedialysis.com.  I am so glad you found us. I hope you dont have to go on dialysis soon but if you do, dont worry, we are here for you.  Just make sure you look into your options, there are different types of dialysis to do, i was on hemo and now i am on PD (which i love so much more)  But you can read more on PD here: http://ihatedialysis.com/forum/index.php?board=25.0    Congratulations on your recent marriage and i hope we get to see some photos of you, hubby and your wonderful "kids" (dogs) in our family album located here: http://ihatedialysis.com/forum/index.php?topic=3727.0   Looking forward to hearing more from you soon...  :2thumbsup;



Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
Razman
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« Reply #3 on: August 17, 2007, 01:49:16 PM »

You have found the best place to be.  There are a lot of people here who have been through the things that you are facing and they will answer questons and support you.  So ,  :welcomesign;  aboard.  Its a long ride but we're all on this trip together.
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donnia
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me and my donor Joyce

« Reply #4 on: August 17, 2007, 03:08:01 PM »

 :welcomesign;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Ohio Buckeye
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« Reply #5 on: August 17, 2007, 03:10:58 PM »

Welcome Janet to the IHD Family!
It is good to have another Ohioan here.
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If I must do this to live, I must strive to live
while I am doing this.
Rerun
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Going through life tied to a chair!

« Reply #6 on: August 17, 2007, 06:13:34 PM »

Once your kidney function is under 20% you can get listed for a transplant.  Make sure and ask your Kidney Specialist about getting on the transplant list. 

You do NOT have to be on dialysis to be listed.

Welcome to the site.
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vandie
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« Reply #7 on: August 17, 2007, 08:19:48 PM »

Welocme Janet.  You have come to the right place for information and support.

Rerun is right.  Go for a transplant with dialysis being a second choice. 
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Life is the journey, not the destination.
_________________________________________
I received a kidney transplant on August 4, 2007.
Laurie
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May 13, 2008

« Reply #8 on: August 17, 2007, 08:28:27 PM »

 :welcomesign; Janet. Glad you found this site.
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
angela515
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i am awesome.

« Reply #9 on: August 17, 2007, 08:46:04 PM »

 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
kitkatz
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« Reply #10 on: August 17, 2007, 08:50:31 PM »

Welcome to the best board about dialysis on the net. IMO! Have fun. Read everything and get involved in a discussion. Nice to have you here.




kitkatz,moderator


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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Adam_W
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Me with Baron von Fresenius

« Reply #11 on: August 17, 2007, 09:18:34 PM »

 :welcomesign;
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Wattle
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« Reply #12 on: August 17, 2007, 09:44:19 PM »




 :waving;  Welcome
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Joe Paul
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« Reply #13 on: August 17, 2007, 10:58:57 PM »

Welcome Janet, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #14 on: August 18, 2007, 02:08:40 AM »

Welcome to our community, Janet!  We are so glad you decided to join us.  This website is, for many of us, one of the most important tools in our handling of this renal challenge.  Here there is lots of information, a place to vent or rage when you need to, caring people who understand EXACTLY what you are going through. even entertainment and fun.  So please take advantage of all this site has to offer.  Keep reading, and please keep posting.  We need to know what is happening with you.  We're not nosy, we're family. :grouphug;


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #15 on: August 18, 2007, 02:10:03 AM »

 :welcomesign;

See you around the forum Janet

Take Care

Tamara xxx ooo  :cuddle;  :beer1;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
sophiasmom
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In center hemo for almost 10 years

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« Reply #16 on: August 18, 2007, 07:42:29 PM »

Hi Janet!

 :welcomesign;
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keefer51
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« Reply #17 on: August 18, 2007, 08:19:35 PM »

 :welcomesign; Janet. I am on hemo now for three years. It's my second time. I live on the east coast too. I live in Pennsylvania.
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
highlite36
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« Reply #18 on: August 18, 2007, 09:32:52 PM »

Welcome!!!!  BTW...your puppy is BEAUTIFUL!!!  YAYYYY!!!!
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ESRD February 2002
Transplant from living non-related donor November 7, 2002
Lost transplant April 2005
Diagnosed with Heart Failure February 2006
Currently on Peritoneal Dialysis, awaiting to be well enough to FINALLY get placed
on the Transplant List.  :-)  I can't wait!!!!
mj
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« Reply #19 on: August 19, 2007, 03:17:59 AM »

Hey there Janet.  You and I seem to have a lot of similarities.  It will be nice to get to know you.  Welcome.

Mj
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del
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del and willowtreewren meet

« Reply #20 on: August 19, 2007, 08:44:41 AM »

 :welcomesign;
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Don't take your organs to heaven.  Heaven knows we need them here.
Hawkeye
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« Reply #21 on: August 19, 2007, 10:50:49 AM »

Hello and  :welcomesign;
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It's not easy being green.
SpeedFleX
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« Reply #22 on: August 19, 2007, 10:59:18 AM »

Welcome, get some tee and have a stay
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brenda
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« Reply #23 on: August 20, 2007, 08:25:08 PM »

 :welcomesign;  Hey Janet!  :welcomesign;
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Life is what happens while your making other plans.
st789
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« Reply #24 on: August 20, 2007, 10:34:33 PM »

Yep, those damn doctors always so busy so they just pass off whatever we have to say as la.....la.....la......as another unfortunate # in their long list of patients.

Welcome to this community and feel free to  :rant; :rant; :rant; :rant; :rant;
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