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Author Topic: Sorry I have not posted  (Read 3201 times)
2dallascowboys
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« on: September 13, 2007, 04:21:40 PM »

Hello to all,

So sorry I have not posted for a while.  Maybe some of you will recall awhile back I said my hubby
Les was going in to get his fistula, well it did not take and now two fistula tries later, we are
looking at a graft next.  I am very concerned about the graft, that it will work as I have read about
"no access"  He does have a perma cath and thank God no trouble with it, it did need to be replaced
about a month ago.  His numbers are very good, and we are transplant listed at two hospitals, one
in Jersey and the other in Phila.
The one good think that did happen was a weeklong visit from daughter and 2 grandsons.  It did
alot for our morale.
I hope all of you wonderful people are feeling ok, lots of best wishes to all,
Anne, hubby Les from NJ
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MyssAnne
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« Reply #1 on: September 13, 2007, 04:25:27 PM »

Anne, I am so sorry to hear about those fistulas, darn it!!!  I'm glad you had your family visiting, I bet that was fun!!
Tell Les, hang in there!!  :grouphug;
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Sluff
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« Reply #2 on: September 13, 2007, 05:29:32 PM »

I hope the graft goes well, and glad you and Les had time to visit with family. A little distraction can be good for the heart.
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2dallascowboys
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« Reply #3 on: September 13, 2007, 05:39:51 PM »

Hi,

Thanks, guys.  Please all keep their fingers crossed that the graft will be OK, he is still
skittish about going back in to get it done, but I think early next week will be talking to the
surgeon.

Again, sending all prayers and good wishes.

Anne and Les in New JErsey
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stauffenberg
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« Reply #4 on: September 13, 2007, 05:50:08 PM »

I had a permcath that worked perfectly from December, 1996 until August, 2005, when I got a transplant, so don't assume that even if you have no options left but a permcath you are anywhere close to having to discontinue dialysis because of lack of access!
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #5 on: September 13, 2007, 05:51:37 PM »

Best of luck! Thank you for the update!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Black
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« Reply #6 on: September 13, 2007, 06:18:54 PM »

The graft in the lower arm will often enlarge the vein in the upper arm and make it suitable for an upper arm natural A/V fistula years later when the graft finally fails.  As long as everyone is VERY careful with the permacath it may last for years as well.  So don't give up on someday getting a good working fistula. 

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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
angela515
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i am awesome.

« Reply #7 on: September 13, 2007, 09:46:36 PM »

Wishing the best for you both.  :grouphug;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Redbomb
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« Reply #8 on: September 13, 2007, 11:33:00 PM »

Man, I hate to hear that!  I'll be saying some prayers for your family!   Hope that everything goes well for you!
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