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Author Topic: Finally considering transplant  (Read 2913 times)
Adam_W
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Me with Baron von Fresenius

« on: August 18, 2007, 02:44:25 PM »

Well, after almost seven months since I was diagnosed with ESRD, I'm looking a little more into transplant. I have my initial evaluation on Sept. 5. There are still a lot of aspects of transplantation that I'm uncomfortable with, such as the surgery itself, and potential problems with the immunosuppressants. But I also know that a successful transplant can give me many years away from the machine, so I'm willing to give it a try. Even if I can only get five years off of dialysis, with no major side effects, then I think it would be worth it. I'll let everyone know how things go.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
goofynina
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He is the love of my life......

« Reply #1 on: August 18, 2007, 02:47:34 PM »

Good choice my dear Adam,  i hope everything goes the way you want it, just keep us posted and remember we are here with you every step of  the way  :2thumbsup;
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....and i think to myself, what a wonderful world....

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Joe Paul
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« Reply #2 on: August 18, 2007, 03:11:05 PM »

Thats great Adam, my 2nd evaluation is the same day !Good luck to you!
« Last Edit: August 18, 2007, 03:13:08 PM by Joe Paul » Logged

"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Romona
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« Reply #3 on: August 18, 2007, 03:51:51 PM »

Good for you Adam! I celebrated my first anniversary of my transplant June 8th. It is a scary thing. I had support and encouragement from a co-worker who had 2 transplants and the second one working 20 plus years. The drugs haven't been too bad. I am on Prograf, 81 mg Aspirin and an antibiotic 3 times a week. Those are my only transplant drugs. I am on one to keep my blood pressure low from my kidney specialist. And a few supplements.

There are alot of drugs at first, but they are eventually cut.  :)

If I can answer any questions for you let me know.
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okarol
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« Reply #4 on: August 18, 2007, 07:51:19 PM »

Knowledge is power Adam, so learn all you can and you will choose what is best for you!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Black
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« Reply #5 on: August 18, 2007, 08:11:26 PM »

I understand you ambivalent feelings.  Hope it goes well for you and keep us posted.
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Lorelle

Husband Mike Diagnosed with PKD Fall of 2004
Fistula Surgery  1/06
Fistula Revision  11/06
Creatinine 6.9  1/07
Started diaysis 2/5/07 on NxStage
angela515
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i am awesome.

« Reply #6 on: August 18, 2007, 08:15:05 PM »

So glad to hear of another person choosing the transplant route, always makes me smile.

I am so far 7 months post-transplant.. hope to be 30 yrs post transplant down the road. ;)

(This was my 2nd transplant, perfect match)
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
KT0930
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« Reply #7 on: August 19, 2007, 09:03:51 AM »

That's great, Adam! Having lived most of my life with transplants, I can't understand those who won't consider it (though I will not deny them their right to feel the way they do). Recently I've thought a lot about how lucky I was to get through most of my childhood and all of adolescence with a working transplant...I was able to feel like a normal kid! Best of luck with the journey, keep us posted and if you have any questions, you know where to come!
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
stauffenberg
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« Reply #8 on: August 19, 2007, 09:07:43 AM »

A transplant is the only sensible option.  Not only do you get back your freedom, energy, and ability to think clearly, but you also greatly extend your life expectancy.  Even though the anti-rejection drugs are toxic, they are not as damaging to the body as continuing on dialysis is.  For example, a diabetic in his forties on dialysis has a life expectancy of only 8 years, but with a transplant his life expectancy goes up to 24 years.
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