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Author Topic: Human rights in medicine and science policy  (Read 1974 times)
okarol
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« on: June 16, 2007, 01:53:03 PM »

Hypothetical end of life dilemma

Suppose there was a patient, Mr. B., with adenocarcinoma, a fast growing malignancy that begins in the liver, the pancreas, or another intestinal organ. Although the patient has lived twice the predicted 3 month life expectancy, the cancer has finally spread throughout the body - to the liver, the lungs, the intestines, and, now, the brain.

Mr. B. is a 50 year old engineer, divorced and has no children. When he found out about his cancer, he spent some time "getting his affairs in order." This month, he moved back to the town he grew up in, to live with his older sister, Mrs. S. Unfortunately, he has not seen a doctor in town, since he had planned to continue seeing the oncologist 50 miles away. The day after he arrived, Mrs. S. found him passed out on the floor of his room and called the ambulance.

On admission to the Emergency Room, Mr. B. is not conscious, can't swallow, and his liver and colon are not functional. The CT scan of the head shows a small mass, but the doctors explain that the problem is probably the loss of liver and kidney function.

The liver has completely shut down, causing the loss of the blood plasma protein normally made by the liver. The fluid from his blood moves from the veins and arteries into the body tissues by osmosis. The liver can't clean toxins from the body, so he is yellow, his blood vessels are losing the ability to hold blood pressure, and his kidneys are shutting down.

Mrs. S. refuses to hear of transferring Mr. B. to the big hospital 50 miles away where his oncologist practices. She insists that Mr. B. is a fighter and has already fooled the doctors by living so much longer than they predicted, and demands that he be given "everything possible" to prolong his life.

The family doctor who is assigned as Mr. B's new Dr. by the ER "on call list" has asked both of the kidney specialist groups in town to evaluate the patient for dialysis and each has separately advised him that the dialysis is not appropriate and declined the consult. For one thing, the veins in his arms and legs are not big enough to handle the amount of fluids necessary for dialysis, and he would need a surgical procedure to place a larger central IV line than the one that was placed in the ER.

The sister, Mrs. S, who is acting as the patient's surrogate for making medical decisions, is furious with the new doctor. Although by th day after admission, Mr. B.'s legs are swollen to the point that the skin has begun cracking and draining, she is certain that the patient is thirsty and hungry. Convinced that the doctor is "killing" and "starving" her brother, she calls a lawyer who takes the family doctor to court. The judge grants an emergency hearing and then orders the doctor to begin dialysis and provide adequate artificial nutrition and hydration.

The family doctor, who is board certified in Family Medicine, which requires continuing medical education and repeat certification each 7 years - in fact, he just passed his boards for the 3rd time - has never written the orders for dialysis, hasn't written orders for "total parenteral nutrition" (TPN) since he was in medical school, and hasn't placed a central line since residency 21 years ago. Besides, his hospital privileges don't include supervising dialysis. He's already explained all of this to the judge.

The doc, just looks at the judge and says, "Tell me, your honor, will you assist me in placing the central line and then dictate the exact orders you want me to write? What rate of filtration and how much pressure should I use in the dialysis? How much fluid can I safely remove, and how fast?"

-------------------

this is from: http://www.lifeethics.org/www.lifeethics.org/index.html
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
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Living Donors Rock! http://www.livingdonorsonline.org -
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Falkenbach
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« Reply #1 on: June 16, 2007, 04:34:04 PM »

It's a tough one. I've always found it unceasingly sad when the to-live-or-not-to-live decision ends up in the court room.

I don't have the answers, but I do think that when multiple (the majority) medical professionals advise against prolonging life, the law should not intervene, despite the family's anguish. People can be quite irrational when suffering anguish.
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jbeany
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« Reply #2 on: June 18, 2007, 08:10:31 PM »

Sort of underlines the importance of having a living will, and making sure your relatives know what kind of treatment you really want, doesn't it?  The court an dthe sister are busy arguing about what can be done, but no one seems to be asking what the man actually wanted done.
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

Falkenbach
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« Reply #3 on: June 20, 2007, 12:14:51 AM »

That IS a very important issue jbeany.

However, I also think there are some family members who may be so anguished - or in rarer cases, so darn arrogant about their own view - that they would continue to argue their own point through legal processes if necessary.
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