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sandygrooms
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« on: June 14, 2007, 04:58:31 PM »
I started dialysis in March 2005. My kidneys function reduced from high blood pressure, after the loss of my first son.
My family has PKD, and out of 5 us three girls have it. the others have no trouble with theirs and don't believe will ever end up on dialysis.
All and all I hate dialysis, and if I had the guts would go off and just die! In my case wouldn't be easy as my kidneys still function.
Didn't find out about the PKD until my 34 year old son died of a heart attack. We then traced it back to my fathers side of the family.
I am so weak, and tired, but keep on going. Hard to climb stairs, can't get up if I get down. My legs won't hold me as I am so weak.
Just found this site and hope to chat with people that know what I am going through.
Right now I am doing PD at home while I sleep, so that has been a lot better than Hemo. I can eat more stuff! LOL
I am 63 years young, married for 21 years and then divorced. Tried it again, for short times and just didn't work for me. Perhaps I just didn't meet the right person.
Have Bi Polar also and am on meds for that. I miss the old fun me!   Sometimes it comes out, but I lost a lot of me with the meds. It is ok because I don't want that up and down life again.
Have been grooming dogs since 1971, love, love, love it. Now I can only work two days a week and don't do that many dogs. It is hard even at that.
I am on the transplant list and have been since Nov of last year. They say at least a year to get a kidney. I hope I don't age out first.
Would welcome any friends to chat about this mess of dialysis.
Sandy
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Roxy
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« Reply #1 on: June 14, 2007, 05:28:48 PM »
  :welcomesign; You will find lots of amazing people on here that will chat and be great support for everything you are going through. Happy you found the site! It has a lot of useful information as well.
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donnia
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me and my donor Joyce
« Reply #2 on: June 14, 2007, 07:36:50 PM »
 :welcomesign;
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
Sluff
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« Reply #3 on: June 14, 2007, 07:51:04 PM »
Welcome to ihatedialysis.com Sandy,

It would not take guts to go off dialysis and just die. It takes guts to be on dialysis and live. I think those that have to live with a major illness such as esrd are some of the most courageous people alive and those that suffer like you on dialysis are some of the strongest willed. The old saying goes that which does not kill me only makes me stronger.

I hope you enjoy it here at IHD.

Sluff/ Admin
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tweetykiss
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« Reply #4 on: June 14, 2007, 08:21:53 PM »
Hi Sandy and  :welcomesign;.  Sorry you are on dials and yes, there is a great support group here who will help you....sorry you also have bipolar as I have heard that can be crippling as well and I am aware one needs for that.....you want to ever talk, I am just a PM away....

:) Tweety
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Husband started hemo dialysis on July 30, 2007
Joe Paul
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« Reply #5 on: June 15, 2007, 01:04:54 AM »
Welcome Sandy, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
sandygrooms
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« Reply #6 on: June 15, 2007, 04:21:11 AM »
Thank you for the warm welcome.
I am glad to have found this place.
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bolta72
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my best friend
« Reply #7 on: June 15, 2007, 04:57:38 AM »
 :welcomesign;
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gotta do what I gotta do.. 2 yrs in ctr hemo
Laurie
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May 13, 2008
« Reply #8 on: June 15, 2007, 06:28:20 AM »
 :welcomesign;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Hawkeye
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« Reply #9 on: June 15, 2007, 06:46:56 AM »
Hello and  :welcomesign;
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It's not easy being green.
kitkatz
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« Reply #10 on: June 15, 2007, 02:08:24 PM »
Welcome Sandy!. It sounds like you have come to the right place. We have lots of discussions here about everything about dialysis.  There are also several other dog lovers around here. One person runs a doggie kennel of sorts ( I think.)

Kitkatz,moderator
  . 
Here is a brief tour od the IHD.com site.
There are lots of interesting discussions in the off topic area: http://ihatedialysis.com/forum/index.php?board=5.0.
 
There is even a fiction story being written by our members in this area: http://ihatedialysis.com/forum/index.php?board=17.0

Home dialysis discussions are in this topic: http://ihatedialysis.com/forum/index.php?board=25.0

The area that generates a lot of discussion about dialysis is the general discussion topics:
http://ihatedialysis.com/forum/index.php?board=2.0
This area of the forum is where the meat and potatoes of the dialysis world are discussed by the members. 
Feel free to post anything you want to discuss or if you have a question.

There is also a search box at the top of the boards to help you in finding topics of interest or answers to your questions.  You can refine your search, too.

I hope this short tour has helped you become better acquainted with IHateDialysis.com.

Again, welcome to the site and have fun while you are here.
« Last Edit: June 15, 2007, 05:41:26 PM by kitkatz » Logged


lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Zach
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"Still crazy after all these years."
« Reply #11 on: June 15, 2007, 08:55:06 PM »
Good to have you with us!     ;)
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)
« Reply #12 on: June 16, 2007, 05:45:15 AM »
 :welcomesign;


Great to see you here!

See you around the site or even in the chatroom!

Tamara xxx ooo  :cuddle;
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
MyssAnne
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« Reply #13 on: June 16, 2007, 06:12:46 AM »
Welcome, Sandy!  Being on dialysis is a hard way to live. We are strong people, to go through this. The fact that you haven't given up tells us you are stronger than you realize!  Talk all you want, about anything you want, we'll listen, and understand!! I'm a pd'er too, and I love it,
much better than hemo!!! 
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Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #14 on: June 16, 2007, 02:09:20 PM »
Welcome to our community!  We are glad you decided to join us.  I can tell that this is just the place for you.  Please take advantage of all that it has to offer - information, discussion, questions answered, firm relationships, games, a place to vent, support in your time of need, etc., etc......
Welcome!


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
mcjane
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« Reply #15 on: June 17, 2007, 11:09:38 PM »
Hi Sandy,
If you hate dialysis your among friends & have come to the right place, everyone here hates it.

There is a lot of freedom of speech at IHD & it's the place to come & bitch & complain all you want.

Welcome & glad to see you here.

Jane
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Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #16 on: June 18, 2007, 05:04:56 AM »
 :welcomesign;
Welcome Sandy I too have PKD.
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Ken
keefer51
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« Reply #17 on: June 20, 2007, 05:46:41 AM »
Hello Sandy I have been on hemo for three years. This is my second time. I am sure you will find many friends here. Welcome.
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
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