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Author Topic: Hello from St. Louis  (Read 3031 times)
ktpuppers
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« on: June 03, 2007, 07:57:42 PM »
My name is Ken and I just discovered this site and thought it was great.  It was just happenstance that I came across the site.  I was looking for advice on setting up for home hemodialysis. 

Here is a little background.  I was diagnosed with FSGS (focal segmental glomerulo sclerosis) in 1980.  My original kidneys quit after 3 years.  The docs decided to do a forearm fistula because I needed to be on dialysis for 1 year in an effort to keep the FSGS at bay.  I received a transplant from my father that lasted 3 years and then received a 2nd transplant 2 months after the first failed.  The 2nd lasted 2 years.  Both succombed to FSGS.  Luckily, this got me through high school.  I returned to dialysis when I was 20 years old and waited for another transplant.  I waited 5 years.  In that time, I graduated college with a degree in historic preservation and began my master degree and got engaged.  After I got my 3rd transplant in 1994, I married Katy (yes, for those who enjoy old music, her name is now Kate Smith) and moved to South Carolina for a position with South Carolina State Parks.  We moved back to Missouri after 2 years.  My transplant lasted a few more years and, again, succombed to FSGS in 1999.  I have been on in-center hemo since that time and am presently working as the Assistant Site Administrator for on of Missouri's state parks.  In an effort to increase my promotional opportunities, I need to create some flexibility in my schedule, thus creating a need for setting up home dialysis.  I am currently on the list awaiting a possible 4th transplant.  But, until that time, dialysis sure beats the alternative (this is my usual response when someone asks how I can tolerate dialysis).

Ken Smith
(ktpuppers)
« Last Edit: June 03, 2007, 08:01:58 PM by ktpuppers » Logged
kitkatz
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« Reply #1 on: June 03, 2007, 08:19:51 PM »
I wante to give you a personal welcome to the IHD.com site.  You will find alot of information and help here.  :bandance;


Kitkatz,moderator

Here is a brief tour to get you started.  

The area that generates a lot of discussion about dialysis is the general discussion topics:
http://ihatedialysis.com/forum/index.php?board=2.0
This area of the forum is where the meat and potatoes of the dialysis world are discussed by the members. 
Feel free to post anything you want to discuss or if you have a question.

There are lots of interesting discussions in the off topic area: http://ihatedialysis.com/forum/index.php?board=5.0.

There is even a fiction story being written by our members in this area: http://ihatedialysis.com/forum/index.php?board=17.0
Home dialysis discussions are in this topic: http://ihatedialysis.com/forum/index.php?board=25.0

There is also a search box at the top of the boards to help you in finding topics of interest or answers to your questions.  You can refine your search, too.

I hope this short tour has helped you become better acquainted with IHateDialysis.com.

Again, welcome to the site and have fun while you are here.
« Last Edit: June 05, 2007, 09:55:47 PM by kitkatz » Logged


lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Sluff
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« Reply #2 on: June 03, 2007, 10:30:57 PM »
Welcome Ken and fellow FSGSer,

You will learn rather quickly how to navigate this site. Thanks for joining IHD, I hope you learn and enjoy your visit here. I'll be looking forward to your posts and whatever input you share.



Sluff, Admin
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Joe Paul
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« Reply #3 on: June 04, 2007, 12:10:23 AM »
Welcome Ken, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Wattle
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« Reply #4 on: June 04, 2007, 12:14:14 AM »
 :waving;  Welcome Ken.

I'm glad you found us.

Yep, I agree dialysis sure beats the alternative.   :P
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
goofynina
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He is the love of my life......
« Reply #5 on: June 04, 2007, 12:34:50 AM »
Hi Ken,  Welcome to ihatedialysis.com.  It sounds like you have had your share of problems with this damn disease and i am sure you have alot to share.  I hope you come often and find the time to share some of your experiences and transplant stories with us all.  Congratulations on your completion of college,  :clap;  Looking forward to hearing more from you, welcome again to our wonderful community.  :grouphug;



Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
keefer51
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« Reply #6 on: June 04, 2007, 06:37:59 AM »
Welcome Ken. I hope you can enjoy the site. With all your experience you will be a big help.
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
nextnoel
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« Reply #7 on: June 04, 2007, 08:48:21 AM »
Welcome to the IHD Family, Ken! :welcomesign;
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I can't reach the hill like I used to, but I'm not at a standstill yet!
Kathleen
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« Reply #8 on: June 04, 2007, 09:47:31 AM »
Ken
 A big howdy from Branson.. :waving;
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paris
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« Reply #9 on: June 04, 2007, 10:08:04 AM »
Hi and  :welcomesign; also have FSGS and lived for years in St.Peters, Mo. Miss St. Louis alot and still a huge Cardinals fan. This is a great site with a lot of great information.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
jedimaster
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Stainboy is....alive!!!
« Reply #10 on: June 04, 2007, 08:44:36 PM »
 :welcomesign;
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Zach
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"Still crazy after all these years."
« Reply #11 on: June 04, 2007, 08:47:13 PM »
Welcome to the community!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Laurie
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May 13, 2008
« Reply #12 on: June 05, 2007, 04:39:31 AM »
 :welcomesign;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
st789
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« Reply #13 on: June 05, 2007, 07:54:59 AM »
Wow, wow, wow.  Welcome to the site.
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lola
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I can fly!!!
« Reply #14 on: June 05, 2007, 02:34:03 PM »
 :welcomesign;
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www.caringbridge.org/visit/ottomachado
mcjane
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« Reply #15 on: June 05, 2007, 08:19:21 PM »
Hi Ken & Kate. Welcome, a really interesting post & can't help saying:

God Bless America.     :usaflag;
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angela515
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i am awesome.
« Reply #16 on: June 05, 2007, 08:53:59 PM »
 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
anja
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« Reply #17 on: June 05, 2007, 10:09:11 PM »
 :welcomesign;   to the community, Ken, glad you joined us!
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rimbo74
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My older brother and me (I'm on the right)
« Reply #18 on: June 06, 2007, 04:18:56 AM »
 :welcomesign;


 :clap;
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1986 - Diagnosed with Alport's Syndrome
10/29/06 - Told Kidneys failed
02/07-07/07 - PD Dialysis
07/31/07 - Kidney Transplant (donor was my older brother)
Earlinda
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« Reply #19 on: June 07, 2007, 08:18:47 PM »
Welcome to IHD!  As a fellow Missourian I am so happy to see you here.  :2thumbsup; I think you will really like it here I know I do. 

Earlinda
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Hawkeye
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« Reply #20 on: June 13, 2007, 02:02:49 PM »
Hello and  :welcomesign;
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It's not easy being green.
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