Introduction

[Jenny]

My husband is about to go on kidney dialysis, and I don't know how to deal with it. I was fine with dialysis for awhile, then they mentioned a transplant, and found a donor, but now they will not do it at this time, because the transplant people want all of it set up ahead a time. He has other medical problems besides. One of his sister's match him in blood type and three antigens, but they will not do it because of the insurance, but they might later on, once we get everything sorted out. This is not very hard to go through, when I have to watch his health go down hill. We are told that he should not use any health supplements. He has five brothers and five sisters.





EDITED: Fixed spelling error in subject line - Sluff/ Admin

[MyssAnne]

Hello, Jenny. It is hard to watch someone you love go through that,
I'm sure you feel as if they snatched that chance for a kidney away from
your husband.   Hopefully this site will give you comfort, and answers
to any quiestions!  Welcome aboard!

[boxman55]

welcome to IHD I hope it all works out for your Husband their is a lot of transplant info on this site maybe some will give you a better understanding of how it all works...Boxman55

[Bajanne]

Welcome to our community, Jenny.  We are so glad that you have joined us.  This is the place to get lots of support, lots of information.  There is always someone who knows EXACTLY what you are going through, so keep posting.  Let us know what is going on with you and your husband.  And keep reading the posts expecially in the Transplant Stories section. 
Hoping that things work themselves out to your husband's best advantage,


Bajanne, Moderator

[Sluff]

Welcome Jenny,

You will learn rather quickly how to navigate this site. Thanks for joining IHD, I hope you learn and enjoy your visit here. I'll be looking forward to your posts and whatever input you share. Your husband is lucky to have you. See you in the forums.



Sluff/ Admin

[kitkatz]

Welcome to the site. It is easy to navigate around and you will see we have a lot of topics covering every thing about dialysis. Epoman set up a good thing for us!


Kitkatz, moderator

[anja]

   Jenny to the community.  Sorry you have to go through so much frustration right now~  hope your hubby is holding his own while all this gets rolling in the right direction.  Maybe the timing is just not right now and all will be for the better.  Hang in there and know we are here for the two of you.  

[Joe Paul]

Welcome Jenny, good to have you aboard.

[tamara]

 

See You Around the Site !

Tamara xxx ooo 

[keefer51]

Hi, my name is keith. i am a member of the ihd family. This is the second time for me on dialysis. The first time i was married. My wife couldn't take the pressure of me on dialysis. Not for reasons you may think. She couldn't take it because it interupted her life. Having a loved one on dialysis is very stressful. In some cases you have to find transportation, insurance coverage, medication, etc... If your lucky some or all of these can be taken care of. once that is all done most people look into a transplant. I was stuck on dialysis for a year before they transplant my brothers kidney into me. We were both rather angry at their apparent reluctance. We had to sit down at a table and almost make them do it. My brother was a perfect match. The kidney lasted over 10 years. I think they drag their feet on sibling donors because they want the patient to go through dialysis for a long time. I believe that they want the patient to be so happy that they have a transplant that they will take extra care of the gift. Their minds are not like ours. Of course we will take care of our new kidney. who wouldn't. I hope that what i wrote in some way will help. You are a special person to stand by and stick with your husband. I know in his heart he needs that the most.

[Rerun]

Hi Jenny and welcome to IHD.  I think it has to do with Medicare.  You have to be on dialysis for 3 months before Medicare kicks in.  But, of course they aren't going to come out and say that.  "Yeah, ya need to be on dialysis so we get paid more money".  That wouldn't sound political correct!  You hang in there.  Dialysis isn't so bad if you know there is a transplant waiting around the corner.  Wow 5 brothers and 5 sisters??  Can they adopt me?

 

Rerun, Moderator

[Earlinda]

I just wanted to welcome you and let you know that you will be in my thoughts during this trying time.  Keep the faith everything will work out in the time that is needed by you and your husband.  Keep on being support for him and try to be understanding as there will be days that are good and some that are not so good.   

Earlinda

[Adjel]

Today, I was told that once you get a transplant, and if that one works for 20 years and then it quits on you, you are back on dialysis again. And waiting for another kidney, and it is cheaper to go on dialysis. That is a lot of money to dish out. Happy trails.

[goofynina]

Hi Jenny,  Welcome to ihatedialysis.com.  You will find that not only are we an awesome website, we are an even more awesome support group and i must warn you, you may get addicted to us   (at least i hope you do)   Please do not hesitate to ask any questions or post any comments and/or concerns of your own.  I am sure you must have lots of questions, and i am sure you will get lots of answers here too.  I look forward to hearing more from you.  Good luck to you and your hubby.   


Goofynina/Admin.

[Hawkeye]

Hello and 

[lola]

Hi Jenny, my husband also is the pt so i know how scary this all is to you the IHD family has given me so much support you'll love it here and all the great people!!!!    Amy

[angela515]