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Author Topic: Hello from North Carolina  (Read 2394 times)
NCspinner
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« on: December 23, 2018, 06:30:28 AM »

Greetings--

I am the care partner for a home hemo patient. We've been doing this for almost two years. There's a lot to be grateful for in our situation but it is still overwhelming sometimes. We moved down here from up north not long before my partner went into kidney failure, and all family members are far away. I look forward to sharing with others on this board.
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Simon Dog
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« Reply #1 on: December 23, 2018, 07:19:45 AM »

If your patient is not doing his/her own needles, I suggest moving in that direction if (s)he is medically able.  This substantially reduces caregiver burden.
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cassandra
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When all else fails run in circles, shout loudly

« Reply #2 on: December 23, 2018, 01:11:34 PM »

Welcome to the site NCspinner


   :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Paul
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That's another fine TARDIS you got me into Stanley

« Reply #3 on: December 24, 2018, 12:11:02 PM »

 :welcomesign;
Hello NCspinner. Welcome to the board.

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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
NCspinner
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« Reply #4 on: January 23, 2019, 11:38:37 AM »

Just FYI, to SImon Dog re: suggesting the home hemo patient learn to do his own needles: I can appreciate the utility of that strategy but my husband has a familial tremor (sometimes called "essential tremor") that is getting worse as time passes. We haven't tried it but I'm pretty sure it would be impossible for him to cannulate himself. Sometimes his access arm is trembling so much that I have to hold it still with my left hand while cannulating with the right hand. So yes, I'm on the hook for everything.
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Simon Dog
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« Reply #5 on: January 23, 2019, 11:09:15 PM »

I would expect the tremor to preclude self stickulation.  (A term I just invented in protest against clinic policies never to use words like stick or puncture when talking to patients).
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