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Author Topic: 17 years and counting Hello everyone  (Read 2857 times)
crzykecia
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« on: October 22, 2018, 05:35:10 PM »

Hi I’m  Kecia I’m 43 years old started dialysis right before my 25 birthday. I have 3 kids who I gave birth to, and 3 kids whom i raised for a time and have been a part of my family since their mom, my best friend died the same year. I’ve been through a lot. Probably should have listen to doctors more concerning my Phosphorus because I wouldn’t be in a rehab facility now with bi lateral hip replacements and being sent out weekly because my catheter has clotted. I’ve exhausted all Catheter placements and I recently received angioplasty in order to place thi last catheter and ended up on a ventilator for 7 days. If I would give advice to anyone take your binders and watch your fluids the scale dot lie. I’m here because after 17 years it’s time I open up realize yes dialysis does suck it’s not a part-time job like I’ve been treating it.
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Rerun
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Going through life tied to a chair!

« Reply #1 on: October 22, 2018, 08:09:29 PM »

Hi K,  Sounds like you have a lot to live for though.  You have been through a lot.  Keep up the trying hard.  Welcome to our site.  I hope you like it here.  We give advice and take advice. 

WELCOME, RERUN - Admin.       :welcomesign;   
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MooseMom
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« Reply #2 on: October 23, 2018, 02:59:25 AM »

Thank you for joining and for reminding us that looking after ourselves is indeed a full time job.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
iolaire
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« Reply #3 on: October 23, 2018, 06:48:55 AM »

Welcome to the group.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
Paul
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That's another fine TARDIS you got me into Stanley

« Reply #4 on: October 23, 2018, 02:17:20 PM »

 :welcomesign;

Hello Kecia. Welcome to the site.
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
cassandra
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When all else fails run in circles, shout loudly

« Reply #5 on: October 24, 2018, 01:25:36 AM »

Welcome to the site Kecia


   :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Mr Ken
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« Reply #6 on: October 28, 2018, 09:10:32 AM »

Hi Kecia,

Every time the comment window opens with the Smileys showing up to insert that is funny.... LOL Anyway Experience by the experienced this dialysis business is more than part time job........... It is very frustrating and no matter how try and make light of it you get frustrated.... Hopefully things will get back onto a level flight plan.

Phosphorous is a pain in the butsky. Take the binder even if you think the food you are eating does not contain a lot of phosphorous. It is a harmless pill and just one more to take.... You just have to pound those Phosphorous levels down  :Kit n Stik;. I had to include one :-)

Ken

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