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Author Topic: I'm new to the site  (Read 2962 times)
aniawoman
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« on: June 09, 2018, 07:35:30 AM »
This is just a quick note to introduce myself.  For almost a year, I have been my husband's care partner for home hemo.  Our clinic nurse is wonderful, but the clinic where my husband goes for his monthly appointment doesn't offer any support groups, so I feel really alone out here sometimes.  I am glad that this site exists so that we can be a part of a virtual community. 
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MooseMom
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« Reply #1 on: June 09, 2018, 07:58:02 AM »
Welcome!!!  You have certainly come to the right place!  I hope you can find the support and information you need right here!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
justagirl2325
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« Reply #2 on: June 09, 2018, 09:26:49 AM »
Welcome, as a former caregiver myself (3.5 years home hemo for my husband who was transplanted 6 months ago) I know exactly what you mean.  This online community is very helpful.
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LorinnPKD
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« Reply #3 on: June 09, 2018, 10:54:02 AM »
Welcome!
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cassandra
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When all else fails run in circles, shout loudly
« Reply #4 on: June 09, 2018, 12:10:59 PM »
Welcome to the site aniawoman


   :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
kickingandscreaming
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« Reply #5 on: June 09, 2018, 02:27:34 PM »
 :welcomesign;  I hope you will feel supported here.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
Marilee
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Hubby was a PD Person - I was 'support'

WWW
« Reply #6 on: June 09, 2018, 04:23:18 PM »
Welcome! I'm my hubby's care partner, too (Peritoneal Dialysis). There aren't any support groups where we live, either, but our monthly clinic visits at the VA are very good (great nurses, doctors, etc.).

I'm so grateful that IHD is here for chatting, comparing notes, and such like that. I hope you find help here, too. :)
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As my hubby would say, "Don't let what you can't do get in the way of what you can."
SooMK
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« Reply #7 on: June 09, 2018, 06:12:54 PM »
Welcome!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Charlie B53
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« Reply #8 on: June 11, 2018, 04:02:13 PM »

Welcome to IHD!

You will find a lot of great people here as we are all in much the same dialysis life, and it isn't always such an easy one.

Mostly patients but not all, there are a number of Caregivers working hard to help keep their loved one as healthy as possible.  And that can be a full time job on it's own.

So definately consider yourself among friends here and feel free to rant as needed.  Often it can be very good to relieve yourself of anger and frustration in ordeer to find a new approach to a problem situation.  Getting hints and ideas from others can also sometimes be of great help.

Hang in there, never give up.  Dr's and Nurses are n ot always right, they are on the wrong end of the needle and many haven't a clue what it is like on this end.

Have Faith in yourself and your ccapabilities.

Take Care,

Charlie B53
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Paul
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That's another fine TARDIS you got me into Stanley
« Reply #9 on: June 12, 2018, 02:51:38 PM »
 :welcomesign;

Welcome to the site aniawoman.
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
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