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Author Topic: Hello!  (Read 3014 times)
irvinsen5
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« on: May 17, 2018, 06:47:00 PM »
Hi I'm Irvin.
My mom, 60 y/o, is going to be starting dialysis soon.
I'm here because I want to know more about it so I could support her.
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PrimeTimer
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« Reply #1 on: May 17, 2018, 09:07:26 PM »
 :welcomesign; Welcome to ihd, irvinsen5! Looks like you are already starting to familiarize yourself with the site and learning, that's good! Your mother is very lucky to have someone be so supportive of her and learning the ropes.  :thumbup;
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
LorinnPKD
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« Reply #2 on: May 17, 2018, 09:43:59 PM »
Welcome!  Your mom is fortunate to have someone looking out for her and learning.  It's so helpful to have someone to talk this over with.

Just starting dialysis can be scary!  I hope things are going well for your mom through this transition.
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Paul
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That's another fine TARDIS you got me into Stanley
« Reply #3 on: May 18, 2018, 11:37:25 AM »
 :welcomesign;

Hello Irvin, welcome to the site.

Your mother is lucky to have you. When her dialysis starts she is liable to be tired and depressed, she will need your support to keep her cheerful through that.
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
cassandra
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When all else fails run in circles, shout loudly
« Reply #4 on: May 18, 2018, 01:53:14 PM »
Welcome to the site Irvin


   :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Jean
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« Reply #5 on: May 18, 2018, 02:50:06 PM »
   :welcomesign;  to the site. As one comedian once said," this is the place that is the place" . there is lots and lots of people to help you. Dont be afraid to ask questions. Your Mom is so lucky to have you.
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One day at a time, thats all I can do.
Marilee
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Hubby was a PD Person - I was 'support'

WWW
« Reply #6 on: May 19, 2018, 06:59:04 AM »
 :welcomesign; Bless your heart for learning as much as you can to help your mom  :2thumbsup;
I don't know which kind of dialysis she will be starting (Hemodialysis or Peritoneal), and that will affect the physical types of support she may need, but as others have said, emotional support is wonderful regardless!
Good Luck to your mom and to you, too.
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As my hubby would say, "Don't let what you can't do get in the way of what you can."
Charlie B53
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« Reply #7 on: May 19, 2018, 05:54:35 PM »

Welcome to our IHD 'Family'!

You might be surprised to find that a number of our members are the caregivers for another Family member.  Dialysis affects everyone in the Family, not only the acutual patient.  Just being related to a patient is stressful, understanding what is going on, how you can help, makes treatments much better both physically and emotionally.

You didn't mention which type of treatment Mom will be getting.  PD at home takes some adjustment but the diet and fluid freedoms are HUGE.  Basically there are no restrictions as the daily treatments work very well once your PD Team adjusts the treatment program, number of exchanges.  Hemo will require much stricter diet and flulid management.  The major difference for me is the amount of time required.  PD took me almost 12 hours nightly.  No evenings out.  If I wanted to spend the night elsewhere I had to pack up and take along a group of 'stuff'  Hemo I go in 3 times w week for 4 hour treatments.  Closer to 5 with the prep and holding to clot off when the needles are pulled.  But I have evenings and weekends FREE!  This is working out pretty well.  I did have to change my diet and can't drink hardly a thing, but I am doing OK with that.  I must be one of the fortunate ones.  As a Veteran I am very well adjusted to doing things ONE way.
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PattyTricia
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« Reply #8 on: May 21, 2018, 11:35:27 PM »
Welcome,
I think its really nice that you want to become familiar with dialysis. This is a great place to get information.
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kristina
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« Reply #9 on: May 22, 2018, 03:22:53 AM »
Hello Irvinsen and welcome to IHD,
it is very sweet of you to become interested in the "ins and outs" of dialysis etc in order to become helpful to your mom.
I am sure your kind support helps her a lot and I wish you both all the best from Kristina :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
SooMK
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« Reply #10 on: May 22, 2018, 03:26:39 PM »
Welcome to IHD! Your Mom is so fortunate that you are interested in the details of kidney disease. I'm not sure many people have that.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
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