Hello!

[ChronicKate]

Hey, this is Kate. I am 50, have had CKD for about 5 years. I just started dialysis last December. I know it makes me very new, but I hate it already. To make matters worse it's not likely that I will get transplant because I have high antibodies. I'm trying to be more grateful but am having a difficult time. Always searching for something better!

[Thesunwillshinetomorrow]

Hi Kate,
I'm very new here too. My partner of almost 5 years has been on dialysis since he was.....well longer than he hasn't. Lost his kidneys at 6. He's rejected 2 transplants and now isn't exploring transplants at all. So...M.W.F he heads to what he calls his, "Second Job."
I have already found lots of help here as I am sure you will as well. I hope others here will have words of wisdom for you. Just know you are not alone!!!

[Simon Dog]

Kate - welcome.  I've had kidney problems for about 25 years, and on D for the past 6, the last 5 being on home hemo.   Life is still great, though I do have my "job" of staying alive.

One key to living the best life is to find which if the numerous dialysis protocols are right for you.   Naturally, this is easiest is you have an MD who has the entire assortment on the menu (s)he can offer. I;m fortunate - the only option my MD does not offer is in center nocturnal.

[PrimeTimer]

  Welcome to ihd, Kate! Please feel welcomed to ask people here questions or even go on a rant. Can be liberating. But most of all you will have a very good  support network here and make new friends. By the way, there is an awesome lady here who has been on dialysis for a looong time and also cannot get a transplant. She started a thread "Life Not On The List". Might offer you moral support and inspiration. Good luck. Keep posting.

[borplotik]

Dont worry!
We support you!

[borplotik]

I do not speak English very well. I am Russian.

[cassandra]

Welcome to the site Kate


   


Take care, Cas

[Charlie B53]

Hi Kate!  Welcome to IHD.  Myself, I've been on Dialysis going on 5 years this coming May.  My first 3 1/2 years I did PD at home until I slipped and ended up with an infection that caused my switch to Hemo.  Fortunately for me I am doing well.  I've learned NOT to eat all those things I love containing potassium and/or phosphorus.  And how much NOT to drink so to keep the amount of fluid I need to take off at treatments low enough I don't have to go through all that cramping.

Keep reading.  Post anything you don't understand and we will try to help best we can.

Take Care,

Charlie B53

[Michael Murphy]

First welcome to the site.  Second don’t give up hope technology for ESRD is on the cusp of major breakthroughs.  Currently there is several research projects working on cloning, better filters, and amazingly enough UCSF (University of California at San Francisco) is working with the FDA to begin testing of a Implantable Artificial Kidney.  They have already completed testing iwith the components used as a Wearable Artifical Kidney and the testing went well.  The testing in humans could begin as early as 2020. 
Google Implantable Artificial Kidney and read about the progress. 

[Paul]

 

Hello Kate, welcome to the site. As Michael Murphy said, let us hope technology finds an answer, it is moving fast. About a year back I saw a news article about scientists growing a human kidney on a mouse, and since then I have been trying to catch one of the buggers.