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StarryNight16

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Another new member

« on: January 23, 2018, 07:05:32 PM »

Hello everyone, yet another new member reporting in. I'm a 50 year old male, taking care of my wife (also 50) who has diabetes and ESRD. She just had the PD catheter put in and we will be starting the home dialysis early next month, I think. We've also got two school-age kids which kind of adds to the burden. But hey, we're all doing the best we can. Looking forward to learning about this forum.


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Vt Big Rig

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Posts: 491

Re: Another new member

« Reply #1 on: January 24, 2018, 05:14:11 AM »

Welcome to the site and best of luck.


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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months, New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help

Paul

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That's another fine TARDIS you got me into Stanley

Re: Another new member

« Reply #2 on: January 24, 2018, 02:32:07 PM »

Welcome to the site StarryNight16. My best to your wife. As to those kids: I thought the whole idea of having kids was to look after you when you get older, I'm sure that can be stretched to include "look after you when you have diabetes and ESRD".


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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!

cassandra

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When all else fails run in circles, shout loudly

Re: Another new member

« Reply #3 on: January 28, 2018, 10:10:36 PM »

Welcome to the site StarryNight16

Take care, Cas


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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

still on waitinglist, still ok I think

MooseMom

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Re: Another new member

« Reply #4 on: January 29, 2018, 02:45:23 PM »

Dialysis affects the entire family. Doctors don't usually tell you that.


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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."

Charlie B53

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Re: Another new member

« Reply #5 on: January 30, 2018, 06:47:58 AM »

Welcome to IHD!

Often Kids will be scared when a Parent has to have medical treatments. Worried that Mom could easily die. This can be quite traumatic. Kids today are much smarter than past generations. They learn so much more and so much quicker, they can understand if things are spelled out clear enough.

Kidney School is a great web site to learn about the kidneys, what they do, how, what goes wrong, and how the different types of dialysis can be used to treat the person, keeping them alive and well. Diet is very important, and this is also spelled out.

http://kidneyschool.org/

Explain what is going on, suggest the kids spend a little time studying at Kidney school. They will quickly lose their fears and understand exactly what and why Mom has to take care of herself doing PD.

Take Care,

Charlie B53


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