Hi y’all!

[RuaBeanCheile]

Hi, my name is Krystina, my husband is the one on dialysis I’m 27 and he’s 31. We live in southeast Wisconsin, this is our second round with dialysis. He went into kidney failure in 2013 from a birth defect and poor diet, we did PD for almost a year. In March of 2014 I donated my kidney. The transplant lasted until October of 2016. All the meds plus his natural melancholy led to an increasing depression so he’d stopped taking his pills for several weeks which led to rejection. He did hemo for a few months while he built up strength for pd again. It’s going alright but not as well as last time. We are holding out for regenerative medicine so if any of you have any info I’d love to hear it!

[Michael Murphy]

Welcome, if I was a betting man I would be betting on the Implantable Artificial Kindey to be the way out for many Dialysys patients.
The University of California at San Francisco (UCSF) is currently under review by the FDA for certification to begin testing.  They are not the only place working on a long term fix for Dialysys, but they appear to be nearest to completion.  Google this and track the work.  Hubby may realize Dialysys may be a bridge to a brighter future.  Good Luck I think the only thing more difficult then  being a Dialysys patient is being a spouse of a Dialysys patient. 

[cassandra]

Welcome to the site Krystina


   


Luck and strength to the both of you, Cas

[Charlie B53]

Welcome to our IHD 'Family'.  There are a number of Family members here that are caregivers and not the actual patient. The difficulties are real.  Dr's and Nurses fail to address many of our questions at all.  IHD will share anything and everything as many of us have already 'Been there, Done that' and are freely willing to help you find a way to cope.

Long ago when I first started taking more than just a couple of meds, I found opening many bottles and taking ONE each pill, I would very often skip taking any of them.  We should all know that skipping meds isn't a very good idea.

One day the VA sent me a pill box.  Actually seven of them lined up in a case. Each day marked, 4 doors, Morning, Noon, Evening, Night.  Each day removable so I could take it out and with me.  Load this thing up once a week, set it alongside the coffee pot next to the kitchen sink.

I very RARELY ever, miss a med any longer.

The way I think, if 'I' can learn, then anyone can.  Cause I've been told I'm a Dumb A$$.

[Paul]

 
Hello Krystina, welcome to the board. As Charlie said there are plenty of people here who will be able to give you advice when you need it. Both caregivers who will be able to advise you when you need it, and people with knackered kidneys who will be able to tell you how it is from your husband's side (many people don't like to burden their partner, so don't tell them things they need to know).