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cbatsea
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« on: January 04, 2018, 11:03:48 AM »
Hi!  I'm not a dialysis patient, but I am my husband's caregiver during dialysis.  We perform dialysis at home 4 days a week for 3 hours 20 mins each treatment.  Hubby started dialysis in July of 2016.  He's on the transplant list at UVA, but we're only into the 3rd year of waiting....

I've been browsing thru the site, and have come across some excellent hints!  Thank you!

We hate this whole process, but doing it at home makes it a bit easier, in that we can choose day/time....the flexibility is great.  Of course, we would rather not have to do this at all, but you do what you must.
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Xplantdad
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Health is not valued till sickness comes. T.Fuller
« Reply #1 on: January 04, 2018, 02:18:38 PM »
Welcome...I was the caregiver for my daughter who was on dialysis (see below in my signature for more info). There are REALLY knowledgeable people here...so ask away with any questions! :)
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 :)
Holly's Facebook Kidney  page: https://www.facebook.com/Hollys.transplantpage/

Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  :thumbup;
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
Paul
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That's another fine TARDIS you got me into Stanley
« Reply #2 on: January 04, 2018, 05:57:42 PM »

Hello cbatsea. Welcome to the site. However I doubt I'll be able to give you much advice as I just lie back and let the nurses do all the work. But there are plenty of other people here who are more technologically knowledgeable about dialysis than me, so I'm sure that if you ever need it, someone will be able to help.
 :welcomesign;
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
Vt Big Rig
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« Reply #3 on: January 04, 2018, 07:50:33 PM »
Welcome to the site and best of luck.
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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
cassandra
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When all else fails run in circles, shout loudly
« Reply #4 on: January 04, 2018, 10:50:12 PM »
Welcome to the site cbatsea


   :welcomesign;




Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Charlie B53
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« Reply #5 on: January 06, 2018, 07:12:47 AM »

Welcome to our IHD 'Family'!

While there are many that are doing home treatment where we shine is helping on another learn the coping skills to make life on Dialysis manageable.

Sharing the things our Dr's and Nurses don't know that is all so much of living on 'our side' of the needle.
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