new member post

[Judge]

Hi   

Native American post diabetic, reversed type 2 diabetes with diet.  A1C 5.0. Currently... Stage 4-5  CKD ,  doing Wei Labs herb protocol right now plus renadryl probiotics.  Renal specialist wants me on dialysysis, gfr is 15, creatin high etc.  But not symptomatic, feel fine.  On second week of herb protocol getting blood work next week, hoping for best. researching at adipose stem cell therapy, hope I don't have to do that but i will.                Absolutely Hate Dialysis!     






Sp mod Cas
EDITED: Moved to intro area-kitkatz,Admin
EDITED: merged intro topics-kitkatz,Admin

[Michael Murphy]

Hi welcome.  Doctors always seem to advise dialysis based on lab numbers.  In my case for 2 years my neph wanted me to start.
I waited till I began to show symptoms, I got two more years of non dialysis life.  Imho labbs number indicate that dialysis may or will be in your future, they are not so good in indicting when.  People at your GFR either are miserably sick or fine.  The sick ones need dialysis the fine ones don't.  My advise is watch for symptoms, work your diet and enjoy your life.  Good Luck.

[kristina]

Hello Judge (very interesting name!) and welcome to IHD.
Please make sure and check-up about the true evidence on stem-cell-treatment. I myself have researched a lot about stem-cell-treatments before starting with my dialysis-treatments and I found at the time that stem-cell-treatments were not quite up to "the job" yet, with lots of promises but hardly any positive evidence. Perhaps stem-cell-treatments in ESRF have developed further now, but all I can say is that dialysis itself has developed very reliably and apart from the 4 hours three times a week on a machine, you won't have any problems at all if you care for yourself and "stick" to the medical rules involved. (i.e. kidney-friendly diet and liquid-restrictions etc.).
Best wishes and good luck from Kristina.

[OldKritter]

hello
Welcome

[kickingandscreaming]

Welcome.  I am all ears to hear about your alternative approach.  I tried Renadyl for a while and it had no impact that I could tell.  I was at 6% before crashing into dialysis.  I still felt good before the crash (pneumonia) so hold out as long as you can.  Dialysis sucks, but the symptoms that require it suck even more.

[Charlie B53]

Welcome to the IHD Family.  We are all in this together.

Because it is your body, you are the one that can tell best when it is time to start dialysis based on not only your labs, but on how you feel.  As ;omg as you are doing fine, then don't start yet.  but it would be wise to learn all you can about the types of dialysis, PD or Hemo, so you can make a much better informed decision as to which type may better fit you when it is time.  If that is Hemo, then start thinking about having your access created now as it can take some months for it to develop well enough for use.  Getting that done ahead of time can greatly save you if and when you do crash and immediately need dialysis.

Mine is having problems developing and been months already.  I am expecting another surgery and may be another couple months before it becomes ready.   Don't waste your time waiting if you decide on Hemo get ready ahead of time.  I didn't, and now that's a problem.

Take Care,

Charlie B53

[Simon Dog]

I still felt good before the crash (pneumonia) so hold out as long as you can.

If you are going to go on PD, starting a bit early can preserve more residual renal function for a longer period of time.   This is worth a discussion with your neph.

[cassandra]

Hi Judge  . Welcome to the site

   


I agree with all the above posts.

Take care, Cas

[Simon Dog]

A friend in AZ with metastatic cancer sent me a series of emails about how well he was doing, and how great the doctors at the Mexican "cash only" cancer clinic were doing with laetrile ("cancer hates laetrile!"), heat therapy ("Cancer hates heat!", etc.).   There were very nice, treated him in a very modern facility.   The only outcome was he died on schedule with less $$ to leave his widow.

Be very wary of these "We are so cutting edge no insurance will pay for it, but if you have the cash...." miracle treatments.

[SooMK]

Welcome Judge!

[iolaire]

Welcome.

[OldKritter]

That is so sad.  But its in our nature to grab anything we think will help

[Charlie B53]

What's really sad is there are so many frauds willing to prey upon the sick, taking their money, a LOT of it, and still not save their life with meaningful effective treatments.  A total rip-off, in effect stealing from those sick people desperate for anything that may save their life.  These places are skirting at the very edge of the law.  They should be covered in tar and feathers, hung out in public.

[Charlie B53]

I started PD very early as my legs had been swelling, leaking daily for a couple of years, getting terrible infections requiring hospitalizations.  So my Dr and I agreed on an early start on PD to end that swelling, leaking, and infection.  Now over 4 years later I STILL have residual function and produce about the same one liter daily.  Alas, starting at about 20% function then, it is now down to about 4% but my urine production remains about the same.  I can't explain it, but I believe that this helps keep my labs well within range.

Talk to your Dr.

[kristina]

That is so sad.  But its in our nature to grab anything we think will help

How very true!!! And thanks for mentioning it, OldKritter! ... And ... unfortunately  ... there are more than enough people who make false promises to desperate ESRF-patients and in exchange they take all the money they can possibly get ...
So ... please let's be on our guards, because, if by any chance a medical remedy to stop ESRF from developing any further would have been discovered, it would have been announced in every newspaper in the whole world, apart from being constantly in the news in all possible languages ... in short, if there would be any medical ESRF-discovery, everyone in the whole world would instantly know about it...
Best wishes from Kristina

[kickingandscreaming]

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if by any chance a medical remedy to stop ESRF from developing any further would have been discovered, it would have been announced in every newspaper in the whole world, apart from being constantly in the news in all possible languages ... in short, if there would be any medical ESRF-discovery, everyone in the whole world would instantly know about it...
I wish that were true, Kristina.  But I've see too many instances where the monetary angle has suppressed new approaches.  If cures were found for many diseases, Big Pharma and the Medical-Industrial Complex might balk about losing their big cut of the market.

[Simon Dog]

If cures were found for many diseases, Big Pharma and the Medical-Industrial Complex might balk about losing their big cut of the market.

More likely, they would "value price" the cure .... that is charging what the cure is worth, not a reasonable markup on cost.

Just look at the miraculous Hep-C cures and how they are priced.