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Author Topic: Hold On Loosely  (Read 2776 times)
PrimeTimer
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« on: November 26, 2017, 04:22:04 PM »

For all you care-partners, spouses and SO's out there, you gotta do like that song by 38 Special says and "just hold on loosely but don't let go".  Hubby's labs look good so we decided to go all out this year and chow down for Thanksgiving, complete with ham, turkey, mashed taters and pumpkin pie topped with Cool Whip. All of it. We ate and we ate. Loved every bite. Of course we knew he'd probably end up paying for it but we ate anyways.

I was nervous at first because we've been very good about sticking with his renal diet. We know what he should and should not eat. We know the consequences. But I've (gladly and finally) reached the point to just hold on loosely. I am learning to loosen up a little so he can breathe and decide what is best for himself. If I constantly worry then he constantly worries. And he already has too much to worry about. If I fret over every little thing that may harm him or happen, he frets and he already has too much to fret about. Stress is a killer, I assure you. So I am learning to loosen up and let things slide every now and then. Let him be in the drivers seat. He needs the freedom. He already has a mother. He's a grown man and can handle things. And he does.

They took about 4 kilos off of him after Thanksgiving. Not bad for having 2 days off and then chowing down. He usually only needs about 1 or 1.5 removed and sometimes not even that. But yesterday he had to do the "big 4.0" and did okay. No crashing or anything. Came home, ran some errands and took a short nap. He's fine and so am I. Whew! An accomplishment for both of us! 


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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Cupcake
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a good year for Chevys

« Reply #1 on: November 26, 2017, 04:35:22 PM »

You demonstrate exactly why medicine is an art, not just a science. Lovely to hear how it all works out.
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PD for 2 years then living donor transplant October 2018.
cassandra
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When all else fails run in circles, shout loudly

« Reply #2 on: November 26, 2017, 09:47:28 PM »

I am so happy to hear that!!! Well done the both of you!


   :flower;


Love y'all, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Charlie B53
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« Reply #3 on: November 28, 2017, 03:59:57 PM »


Well Done!

I firmly Believe that we can still have all things, only keeping them within that 'Moderation' thing.

So we give in and enjoy a little?  So What?  We can make up for it a little bit over the next couple of days and still have our labs come out within range.

I have to admit, I do allow myself a couple of small rewards, or pleasures.  Just not every day, and not too much at one time.

I'll be alright.
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