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November 28, 2024, 03:35:03 PM

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Author Topic: Re: Hello, I'm new here  (Read 2799 times)
beep
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« on: December 27, 2016, 02:30:16 PM »

hi im beep been on HD 3 yrs now
« Last Edit: December 27, 2016, 02:35:03 PM by beep » Logged
cassandra
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When all else fails run in circles, shout loudly
« Reply #1 on: December 27, 2016, 02:48:40 PM »
Welcome to the site beep

   :welcomesign;

Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Charlie B53
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« Reply #2 on: December 27, 2016, 06:05:47 PM »

Hi beep!

Welcome to IHD!

Did you just find us?  Or have you only now decided to join?

Whatever, we are glad to have you among the fold, all part of one big 'Family' of renal sufferers and their partners.

Glad to have you aboard.

Take Care,

Charlie B53
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beep
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« Reply #3 on: December 27, 2016, 07:23:13 PM »
thanks for the welcome .  just heard bout this forum, had some trouble registering but im here now n i reckon this is wat i been looking for ,for a long time some one i can talk to bout my disease
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Michael Murphy
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« Reply #4 on: December 28, 2016, 12:17:50 AM »
Welcome this is a great place for info, and understanding.  Both are in short supply in the rest of the world, but here it's common.
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iolaire
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« Reply #5 on: December 28, 2016, 06:43:32 AM »
Welcome.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
SooMK
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« Reply #6 on: December 29, 2016, 06:23:17 AM »
Welcome Beep!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Vt Big Rig
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« Reply #7 on: December 29, 2016, 10:15:58 AM »
Welcome to the site.
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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
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