Augg nothing but a run around

[babycake]

Auggg
update
this is so dang frustrating
i was in the hospital
the end of july and i got out aug 2nd
they had talked about doing the surgery in 2weeks
to fix my heart valve and my pacemaker
for i have a infection in both
nothing had been done
my family doc put in a referal about 2 or 3weeks ago
and then the other day i was in there and i had him sign a form and he sent me to the main desk to get another refereal.... i get one in my reg mail, even on my health chart so i actually got 5 referals when i only needed one...
and then while i was in dialyis today the kidney doc was there and ask me if i heard anything and i told him about all the dang freaken referals he didnt understand that so he had the dialyis nurse call and she told me everything was on the go, but i didnt hear anything so i called when i got home and she said my doc sent them a note that i needed to be seen but didnt say why..........''F'' yes im pist.... im seriously thinking of going to OHSU for its a better hospial.... and now i got more news i did a liver test a few days ago at the hospial and they said i have liver serosis, which i belive has to do with the kidney diease
but they said there was no liver masses so i have to get blood work done and a follow up appt
also this one beats the cake....Augg....
i had a alter sound done a few weeks ago on my dialyis arm
a reg routine check up
and they said up by my shoulder area it was narrowing so surgery on that one but who know when for that dang doc was on vacation
IM NOT THINKING nEGATIVE
IM STAYING POSITIVE
but cant anyone get anything freaken right

[smartcookie]

That is so frustrating!  I am glad you stay on top of your care, because it doesn't sound like anything would get done if you didn't!   

[babycake]

totally agree
my mom was saying
i sounded more relaxed today
i am.... frustration doesnt help

[iolaire]

im seriously thinking of going to OHSU for its a better hospital....

I think its important to trust your team, so if its convenient to move hospitals its well worth it to think seriously about the move.

[babycake]

i did talk to kidney care
and talked to the kidney doc back up
 and she was going to put a referal in to ohsu
and get this
i got the 7th dang referal from myhealth chart
and 36visits to the surgeon