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Dialysis: Home Dialysis - NxStage Users
Olá amigos from sunny Portugal
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Topic: Olá amigos from sunny Portugal (Read 3897 times)
cassandra
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When all else fails run in circles, shout loudly
Olá amigos from sunny Portugal
«
on:
October 10, 2016, 05:21:53 PM »
Hi sweet people, well I've made it to sunny Portugal with my dodgy fistula arm. Yes I'm happy I'm here, but right this minute, or right these hours I really hate dialysis. As we drive from the UK to Portugal, so sailing with the over night boat to Spain, than further down to the Algarve, we are now in an okay hotel in North Portugal. My machine and drain all nicely sorted, no complaints.
But the chair I'm sitting on is SO uncomfortable, and hubby is nicely a sleep, cos SO tired..... I'm SO tired too, but I still have 45 mins to go, and my back is killing me, and I really NEED some Mentos (which are in my bag, out of reach of course silly me)
Anyway only 41 mins to go now, thanx for reading.
Love y'all, Cas
Logged
I started out with nothing and I still have most of it left
1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96
still on waitinglist, still ok I think
kickingandscreaming
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Re: Olá amigos from sunny Portugal
«
Reply #1 on:
October 10, 2016, 07:13:34 PM »
Hope you have a great stay! I can't imagine dragging something like a NxStage machine on a trip. I know people do it, but it really sounds like a lot.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
PrimeTimer
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Re: Olá amigos from sunny Portugal
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Reply #2 on:
October 10, 2016, 08:39:56 PM »
Kudos! Hope you have a wonderful time! Hope you take lots of pictures for your photo album. I like to pick up postcards to keep just in case my pictures don't turn out.
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
iolaire
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Re: Olá amigos from sunny Portugal
«
Reply #3 on:
October 11, 2016, 06:00:44 AM »
Sitting in a hotel chair for hours? I feel your pain. Better get the next hotel's bed pushed over so you can lay down.
FYI For reference my Portugal trip last month was the lowest cost dialysis yet, a NephroCare site in a hospital in Lisbon was 117.5 euros per session! The DaVita in Porto was something like 175 euros.
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Transplant
July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.
Well on dialysis I traveled a lot and posted about international trips in the
Dialysis: Traveling Tips and Stories
section.
Michael Murphy
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Re: Olá amigos from sunny Portugal
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Reply #4 on:
October 11, 2016, 11:48:09 AM »
If anyone deserves a great vacation it should be you, enjoy the sun and make good memories.
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cassandra
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When all else fails run in circles, shout loudly
Re: Olá amigos from sunny Portugal
«
Reply #5 on:
October 11, 2016, 12:02:42 PM »
Ooo you're all too sweet. Now arrived in Armaçao de Pera, and 'normal' D will commence.
It's gorgeous outside. I will make lots of pictures, and have invested £20,- just so I can stay
in contact with y'all
Love y'all, Cas
Logged
I started out with nothing and I still have most of it left
1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96
still on waitinglist, still ok I think
Xplantdad
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Posts: 304
Health is not valued till sickness comes. T.Fuller
Re: Olá amigos from sunny Portugal
«
Reply #6 on:
October 11, 2016, 01:08:17 PM »
Sounds like a ton of fun!
We are really thinking about traveling for a 4 day weekend with our cycler...Just haven't done it yet!
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016
Holly's Facebook Kidney page:
https://www.facebook.com/Hollys.transplantpage/
Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
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