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Author Topic: Hi, New carer here  (Read 2515 times)
GrowlingDog
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« on: April 26, 2016, 08:30:57 AM »
Hi

My wife has been having Hemodialysis for about 8 months now.  We are currently training so we can do this at home, the plumber and electrician are coming next week to start getting things ready for the installation of the Water filters and the Braun Dialysis machine.

I do most of the work with the machine, and can do everything now required for her dialysis under the supervision of the trainer at the hospital. We should be transitioning to dialysis at home in the next 3 - 4 weeks.

I'm lucky that my employer is understanding and I am able to work from home, so she can dialyse while I am working.

I've got a few questions so I will head off now and have a search around the forum as I'm sure most have been answered before.

Cheers

Steve
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Michael Murphy
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« Reply #1 on: April 26, 2016, 11:01:24 AM »
Welcome, I am happy to hear that you can work home and care for your wife at the same time.  Just rember either side of the machine is stressful and take care of yourself as well as you wife.
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justagirl2325
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« Reply #2 on: April 26, 2016, 11:25:58 AM »
Welcome.  I'm a care partner for my husband on dialysis - we've been at home on and off for about 1.5 years depending on his health struggles.  Currently on a home stretch again.  You'll find lots of helpful information here.
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Hootie
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« Reply #3 on: April 26, 2016, 12:07:00 PM »
Welcome and agree lots of help here!  The different topics provide a wealth of information. It helped me when we started at home and since.


Joe
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Caregiver for wife with ESRD and type Type 1 diabetes (almost 50 years).  HHD with NxStage machine January 2015.
Transplanted  December 7, 2016
Xplantdad
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Health is not valued till sickness comes. T.Fuller
« Reply #4 on: April 26, 2016, 01:40:40 PM »
Welcome! I am a caregiver for my daughter...and we've been on home hemo since January :)  (NXStage)
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 :)
Holly's Facebook Kidney  page: https://www.facebook.com/Hollys.transplantpage/

Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  :thumbup;
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
hatedialysis2
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« Reply #5 on: April 26, 2016, 02:27:44 PM »
Welcome GD!  This forum has a lot of supportive folks.  Best wishes for a smooth transition to HHD
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cassandra
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When all else fails run in circles, shout loudly
« Reply #6 on: April 26, 2016, 03:09:18 PM »
Welcome to the site GD

     :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Charlie B53
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« Reply #7 on: April 26, 2016, 06:09:22 PM »

Welcome to IHD.

Earlier I had tried to post a 'Welcome' note, but my Laptop and I are not in a compatable mode.   One of us has an attitude.   Can't be ME! lol   That touchpad and I do NOT get along very well and I, or this laptop, can erase a whole paragraph with a simple keystroke.   This happens way too often.

Once upon a time we used pencil and paper.   Life seemed much simpler.   But we wouldn't have forums like this, would we?

Hopefully you will find this place useful, we try.   Which is all we can do is keep trying to survive together.

Take Care,

Charlie B53
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GrowlingDog
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« Reply #8 on: April 27, 2016, 06:17:02 AM »
Thanks all for the welcomes, I have found loads of helpful info already.
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Rerun
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Going through life tied to a chair!
« Reply #9 on: April 27, 2016, 08:29:37 PM »
Hello, so glad you joined.  Keep reading.  Lots to learn.


WELCOME - Rerun, Admin.   :welcomesign;

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