What's your creatinine at and how long have you had your kidney?Living/cadaver?

[DialysisGoneFOREVER]

This of course applies only to transplant patients.

My creatinine is 1.9 and I've had my kidney 3.5 weeks from a living donor.  They're confident it will come back down.

How about you guys?

[cattlekid]

I will have my 3 year transplant anniversary on April 16 and my creatinine bounces between the 1.2's and the 1.3's. 

[DialysisGoneFOREVER]

I will have my 3 year transplant anniversary on April 16 and my creatinine bounces between the 1.2's and the 1.3's.

That's great! I added to please say if you got a living donor or cadaver?

[coravh]

My creatinine is really, really labile. Over the last 13 1/2 years I've ranged from 1.5 down to 1.1 and now usually settle between 1.6 and 2 (or so). It depends on so many things for me, including (sometimes I think) the phases of the moon. So basically I never panic unless my level rises consistently and significantly for 3 labs in a row. I had that before they switched me off prograf.

[DialysisGoneFOREVER]

If they took you off prograf then what do you take now? Did you have a living donor or cadaver?

[Deanne]

Two years post transplant and my creatinine is 0.7

I had a deceased donor.

[coravh]

If they took you off prograf then what do you take now? Did you have a living donor or cadaver?

I started out on rapamune and prograf (no prednisone), and then for many years (about years 2 - 11) I was on rapa and myfortic. But in recent years I developed gastric issues with the myfortic, so for the last 2 years I've been on rapamune and imuran. My half cousin and I were a  1 out of 6 match and so far I've never had an episode of rejection (knock on wood)

[cattlekid]

I had a high risk deceased donor.  Even though the donor was high risk, the kidney itself was an excellent match so to me it was worth the risk.

I will have my 3 year transplant anniversary on April 16 and my creatinine bounces between the 1.2's and the 1.3's.

That's great! I added to please say if you got a living donor or cadaver?

[MooseMom]

I am almost 4 years post tx; my kidney is from a deceased donor.  My creatinine runs anywhere between 1.1 and 1.2; my latest reading was 1.14.

[DialysisGoneFOREVER]

Cattlekid, what do you mean by high risk? Was the donor really old or sick or something?

[cattlekid]

The US Centers for Disease Control define high risk donors as those that are at higher risk for HIV due to one or more of the following behaviors:  men having sex with other men, IV drug use, hemopheliacs who have received human clotting factor concentrates, people who have exchanged sex for drugs or money, people who have had sex with those in the previous categories, people who have been exposed to HIV and jail inmates.  You can decide whether or not you will accept a kidney transplant from a person in one of these categories. 

The others (older, sicker individuals) are considered Extended Criteria Donors.  I chose to *not* accept an ECD kidney but I did take a high risk kidney.  The kidney was still screened for HIV with the best tests available but there is a very small risk that I might contract HIV.  I did have to get a HIV test at my one year transplant appointment and that came back negative.

Cattlekid, what do you mean by high risk? Was the donor really old or sick or something?