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Author Topic: No More EPO From Fresenius?  (Read 11240 times)
cassandra
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When all else fails run in circles, shout loudly

« Reply #25 on: January 11, 2016, 06:42:41 PM »

I agree PT in the UK I can still take EPO (i.s.o. Neorecormon it's now Eprex ) but still EPO and I can still give it myself, however iron has changed from Venofer which I could put through the machine into Interject which I have to go to hosp for. Completely weird I agree. Boo all the way back

Love and luck Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Simon Dog
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« Reply #26 on: January 12, 2016, 05:43:31 AM »

So far, so good with Micera.  No side effects; HGB responding as expected; no wait at the clinic when I go in for puncturing.
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Charlie B53
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« Reply #27 on: January 12, 2016, 05:52:19 PM »

Yes, I DID.

I keep asking my Primary Dr for the Shingles Vaccine, she somehow manages to put me off, again, and again.

My Wife had them around her left side just above the belt line, from spine to navel.  She was miserable.

I would describe them a looking like some mid-evil curse.

Don't remember the name of the anti-viral they gave her, but I was very glad we had great health and pharmacy coverage then as our co-pay was only IIRC $15.  Pharmacist told me they were charged something like $800 per pill !!!!!!!   Times 4 a day.  Damn Drug Companies.

I developed a 3 inch spot on the inside of my L calf.  Dr claimed it was shingnles.  No pain, just blisters and a mess so I kept it covered.  Wasn't too long, healed.  Lucky?
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Vt Big Rig
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« Reply #28 on: January 13, 2016, 06:49:51 AM »

So far I have had no push back from the clinic for demanding EPO. Recall the Micera (I Believe) gave me severe headaches.

The neph had told me at two clinics he was getting good results from the Micera so I am surprised but thankfully he seems willing to treat us all as needed, not "per procedure".
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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
Simon Dog
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« Reply #29 on: January 13, 2016, 09:47:20 AM »

Quote
Damn Drug Companies.
Time to buy stock.
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cassandra
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When all else fails run in circles, shout loudly

« Reply #30 on: January 13, 2016, 09:54:19 AM »

And shares (?)
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Simon Dog
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Gender: Male
Posts: 3460


« Reply #31 on: January 13, 2016, 11:04:17 AM »

And shares (?)
Same thing.
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