Anybody else get this?

[RenallyChallenged]

Ever since I lost my transplant and started dialysis, I've been feeling like my throat and tongue are swollen. If a drink a little, it gets better, but it comes back after a while. I know, the first time I had kidney troubles back in 2005, my tongue started to swell up, but it went down. It seems to be happening more often lately, though. It's kind of scary and uncomfortable. Anybody else ever get this? If so, what do you do to make it go away?

[cassandra]

Did your meds change when you lost your transplant? I had the tongue swelling, and turned allergic to just about anything. I used to be allergic to quite a lot of things before I had my dad's kidney, but the immuno suppressants suppressed the allergies too, so it could be the discontinuation of the immuno suppressants?

[Rerun]

Mention it to your Neph when he/she rolls around.

Keeps us posted.           

[kitkatz]

It might be due to meds, or you may be allergic to something you are eating or drinking.  You can do an elimination diet to see if there is anything bothering you.

[nursey66]

Is it really swollen , or just feels like it is.  Sometimes anxiety can do this. I sometimes feel like I have a Hugh lump in my throat, it's so painfull. I had every test endoscopy, etc nothing found. Sometimes I think I am going to pass out.  Ice water helps. It usually comes on when I get stressed out.

[Riki]

I had that when I first got sick, back in 1991.. it was the first real symptom that I remember that told me something was weird... all the other symptoms seemed normal... like if you had flu or something like that... anyway.... in the days before I started dialysis, I felt like my tongue was a foot thick.. it felt like it filled my entire mouth, and I wasn't able to talk... what it turned out to be, was something similar to toxic shock syndrome.. the buildup of toxins from the kidney failure did some weird things to me... but the feeling of the thick tongue was the beginning of my body shutting down... I was rushed to the hospital, and started dialysis almost immediately after I was found in bed, in the fetal position, and unable to move or speak voluntarily... my saving grace was that the pediatrician who had been called in had seen it before, and she knew what it was... if she hadn't, I wouldn't have lasted the night... she gave me calcium and albumen, which made it so that I could move and talk... it was like the tin man being oiled.. I was able to move again... then I was put on a plane and sent to the nearest children's hospital.. that was around 2am.. and I started dialysis for the first time around 7am...