fluid loss dilema and home dialysis

[fuzzyL]

here's what puzzles me--okay as usual I weigh myself before a treatment then say for example we set the machine to take off 2.5 liters-then the machine indicates that it did indeed take off 2.5 liters--yet a t the end of the treatment I don't weigh 2.5 liters less-it might be only 2 or not even 2 --any one know what is happening--thanks

[Charlie B53]

I don't know why the machine records different from your actual weight.  Not a clue.

However, as for the machine NOT taking whatever is programmed, one of the Nurses in my clinic tells me that some people are 'easy' like me, and others are 'hard', possibly like you, and most are perfectly 'normal.

This is relating to how well the machine takes off fluid.  Many times the machine will take off MORE than what it's set for on me, making me one of the 'easy' ones.  They have to be very careful setting the machine.  Obviously setting more takes more, but on me it takes even MORE.  Sort of a sliding scale.  I've weighed out anywhere from .1 to .7 UNDER because of the machine taking more than the 'set' point.

Nurse tells me those 'hard' patients are just the opposite.

Small take-offs aren't much of a problem, it's when I fail to control my fluids as well as I usually do, which is most of the time.  Being Human I have my faults and once in a while splurge just a little too much.  Or eat Chinese.

[Cupcake]

How good is your scale? Some aren't that accurate.

[Simon Dog]

I fail to control my fluids as well as I usually do, which is most of the time. 

Oxymoron alert 

[cassandra]

I'm pretty sure I've read this before from someone on Nxstage, and it turned out to be a problem with the cycler.
The other possibility is that your scales are moved (we have a wooden floor, I taped a cross on the floor so the scales are always on the same spot. Nb if I move the scale 10 cm to the right, I can gain 0.3 kilos.


Good luck, Cas

[Charlie B53]

I fail to control my fluids as well as I usually do, which is most of the time. 

Oxymoron alert 

LOL

Maybe I should have chosen my words a little better.

MOST of the time I do quite well with my fluid control.  There, that should have fixed it.

But I have to admit that on occasion, not very often, I totally fall off the wagon, or boat, and take on for me, a lot more water.

My average take-off in-clinic still holds under 2.

Summers working out in the yard I have come in anywhere from + .7 to being UNDER weight.  Which surprises me as being outside and sweating even just a little, I do drink almost a whole glass of ice water.  Freaking thinking I may be over doing it with that much liquid.

I should really think about stepping on the scale at home once in a while.  On PD I weighed Religiously Morning and Night.  Since the switch to Hemo and weighing in clinic I very rarely weigh at home.

My head must be wacked.

[fuzzyL]

thank you all for your input!!!  I called nxstage about the issue--on Monday treatment we set it for 3liters and my scale showed a loss of only 2.2 liters-I had about 75cc of liquid and ate some crackers during the treatment--the nxstage tech said on today (Wednesday) do not drink or eat anything during the treatment which I followed-again we set it for 3 L  with no water or food, and again it took only 2.23 liters, so the tech is convinced its a machine problem and they will swap it out tomorrow-then we will see what happens on Fridays treatment