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Author Topic: Hello. I'm Kozmo  (Read 3616 times)
Kozmo
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« on: December 17, 2007, 11:58:33 AM »

Actually, Kozmo is my dog's name.  He's the cute little guy I use for my avatar.

I am 46 years old.  Three years ago, I went to the emergency room because I was having difficulty breathing.  My blood pressure was 286/167.  That is when I found out I had high blood pressure and what it could do to you - CHF and Renal Failure.  They started to talk to me about going on dialysis.  I didn't know much about dialysis.  I pretty much thought that going on dialysis would mean my life was over.  So I went into denial.  I hoped that if I got my blood pressure down, things would get better.  Three years later, I had ballooned up to 330 pounds from the excess fluids building up in my body.  I could barely walk, couldn't go up stairs, couldn't get up off of the floor, had trouble breathing.  I finally had to face the fact that my kidney were gone and they were never coming back.

I went on dialysis in July.  I couldn't believe the change.  In just over a month of dialysis, I had lost 100 pounds of fluid and I felt better than I had felt in 3 years.  I had forgotten what it was like to be able to walk over 50 feet without stopping to rest.  Wow. 

Although I feel better physically, it is still hard not to feel defeated by the whole situation from time to time.  It was nice to find a web site full of people who can relate to my situation and to whom I can relate in return.

Good Luck to us All
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KR Cincy
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Home hemodialysis since May 07

« Reply #1 on: December 17, 2007, 12:05:14 PM »

 :welcomesign;
Glad you found our little corner of the www...it's great being with folks who understand this ride we're all on!
Take care of yourself and enjoy IHD...and happy holidays!!
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Not giving up...thanks to Susan.
lola
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I can fly!!!

« Reply #2 on: December 17, 2007, 12:06:26 PM »

 :welcomesign;
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willieandwinnie
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« Reply #3 on: December 17, 2007, 12:12:45 PM »

 :welcomesign; Kozmo. This is truely the best web site. We are all like one big family. Lots to read and learn here.

Take care.
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"I know there's nothing to it, but I want to know what it is there's nothing to"
angela515
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i am awesome.

« Reply #4 on: December 17, 2007, 12:20:47 PM »

 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Joe Paul
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« Reply #5 on: December 17, 2007, 12:32:36 PM »

Welcome  Kozmo, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
thegrammalady
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« Reply #6 on: December 17, 2007, 01:27:46 PM »

 :welcomesign;

this is a good place to land
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s
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
bolta72
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my best friend

« Reply #7 on: December 17, 2007, 01:34:29 PM »

 :welcomesign; :waving;
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gotta do what I gotta do.. 2 yrs in ctr hemo
Sluff
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« Reply #8 on: December 17, 2007, 03:12:44 PM »

Hello Kozmo, welcome to IHD,

You will find there are all kinds of people here, some who have felt great while doing dialysis and those who are not doing as well on dialysis, either way this forum is open to everyone. I'm glad you seem to be doing well and I hope you continue to do so. There is a lot of information here and I hope you find this site helpful and friendly.

Sluff/ Admin
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st789
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« Reply #9 on: December 17, 2007, 03:38:36 PM »

 :welcomesign;

Take care and please visit us again.
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oswald
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« Reply #10 on: December 17, 2007, 03:58:07 PM »

 :welcomesign;
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ESRD 11/95
1st Transplant 7/1996 (failed; Nephrectomy 12/1996)
2nd Transplant 3/1999 (lasted 6 years)
3rd Transplant 5/2007 (lasted 4 years)
Katonsdad
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« Reply #11 on: December 17, 2007, 04:42:59 PM »

Hi . and welcome .....
I too am a newbie here and I have found so much fellowship and fun .
I feel like it is one great big waiting room where we all know what we are all going thru .
There are some really neat people here .    I was searching for a support group in my area and
after finding this web site I feel like I have found it , without leavig home .

Good luck

Katonsdad
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Diabetes 1976
Eye issues 1987
Kidney Failure 1997
CAPD 1997 , Stopped 1997 due to infections evey 28 days
Started In Center Hemo 1997
Received Kidney/Pancreas transplant 1999 at UCLA
Wife and I had son in 2001 , by donor for my part (Stopping the illness train)
Kidney failed 2011 , Back on Hemo . Looking to retransplant as the Kidney is still working



Soft kitty, warm kitty,
 little ball of fur,
happy kitty,sleepy kitty,
 purr purr purr ::
Sheldon and Penny on The Big Bng Theory
Ang
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« Reply #12 on: December 17, 2007, 06:50:09 PM »

 :welcomesign; hope  you enjoy  the  ride



EDITED: Fixed smiley icon - okarol/moderator
« Last Edit: December 20, 2007, 10:45:58 AM by okarol » Logged

live  life  to  the  full  and you won't  die  wondering
kellyt
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« Reply #13 on: December 17, 2007, 06:55:47 PM »

 :waving;   Glad you found us!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
paris
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« Reply #14 on: December 17, 2007, 08:00:07 PM »

Kozmo, so glad you found us.  This is a great site and you will love everyone here. It is truly a family and we share everything--sometimes too much, just like family!  Looking forward to hearing more from you.  Welcome!! :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #15 on: December 19, 2007, 06:54:20 AM »

Welcome to our community!  That was a really interesting intro.  I think that many will be helped by it.   I didn't have all the extra pounds, but I too got to a point that 3 steps up would have me puffing and blowing and feeling as if I had just run a marathon.  That was the first thing that dialysis changed for me.
Dialysis is not pleasant, but it is not the end, thank Goodness.  It has allowed me to be able to enjoy my grandson for a bit more time.
Please take advantage of all this site has to offer.  It is not hype when I say that we have become a real family.  I have proof.  Members have participated in the homegoing of our founder, a wedding, a time in Vegas, we have given and received Christmas gifts and cards, and we are there for each other when we are facing our various challenges.  what more could you ask?

Bajanne, Moderator

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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
cambonesegirl
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« Reply #16 on: December 19, 2007, 09:53:50 PM »

 :welcomesign;
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Hawkeye
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« Reply #17 on: December 20, 2007, 10:19:37 AM »

Hello and  :welcomesign;
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It's not easy being green.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #18 on: December 20, 2007, 10:49:32 AM »

 :waving; Hi Kozmo,
I am glad you were able to regain some quality of life after beginning dialysis. It sounds like you were having a very tough time and I imagine your health was at great risk. It's funny what we will do to avoid treatment - I always hate to start new medications because I don't want to be dependent on a pill bottle. I hope you continue to share on IHD!
Welcome!


okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Romona
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« Reply #19 on: December 23, 2007, 11:40:37 AM »

Hi Kozmo,
My story is similiar to yours. Went to the ER, found out I had CHF (the flu attacked my heart). Transferred to UPMC in Pittsburgh because the local hospital thought I'd need a heart transplant. My heart completely recovered and I found out about my kidneys. A year later I was transplanted. I'm doing well. Best wishes to you! Welcome to the family! :waving;
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Laurie
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May 13, 2008

« Reply #20 on: December 26, 2007, 04:57:55 AM »

 :welcomesign;
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
MyssAnne
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« Reply #21 on: December 26, 2007, 09:20:19 AM »

 :welcomesign; :welcomesign;

Welcome, Kozmo!!  Cute puppah!!!  I'm glad you found us, and I hope you enjoy yourself here, as we do!
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cambonesegirl
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« Reply #22 on: December 26, 2007, 09:51:54 PM »

Wowzer.... 100 lbs of fluid? I'm glad you're feeling physically better. I went into denial about facing dialysis. I was hoping it would never have to happen, but after nine years it's not too bad, lots of friendly people there.  :welcomesign; WELCOME and your doggy is so cute!
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