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Author Topic: Hi, new member here.  (Read 3853 times)
Adam_W
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Me with Baron von Fresenius
« on: March 16, 2007, 05:53:34 AM »
Hi, I've been lurking here for awhile, and I finally thought I would join. I'm 25 and I was diagnosed with ESRD on Jan 21st, '07. I started hemodialysis on the 25th. I just got put on the waiting list (four months....Booooooo!) to start training with the NxStage at home. I've taken quite an interest in studying the technical details of my treatment, so much so that I sometimes drive my techs crazy because I ask alot of really technical questions and I like to have the machine turned toward me so I can read my data screen. They are very open to that, however, and they are usually more than happy to turn my machine. My unit manager even gave me an operating manual for our machines (Fresenius 2008H). Obviously, I'm not exactly happy that I'm on dialysis, but I try to make the best of it, since I can't do anything about it. Take care.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Sluff
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« Reply #1 on: March 16, 2007, 05:56:34 AM »
Welcome Adam to IHD.

Thank you for introducing yourself, it is the best way for us to get to know you better. Whatever your reason for joining our family here at IHD, I hope you find everything you need, but most importantly I want you to feel comfortable to ask questions and come back and post often.

Here are some links to help you out.

Site rules: http://ihatedialysis.com/forum/index.php?topic=540.0

Chat: http://ihatedialysis.com/forum/chat/flashchat.php

The best search engine for kidney related issues: http://www.kidneyoogle.com

Relationship advice: http://www.renalromance.com


Sluff, Administrator
« Last Edit: March 16, 2007, 06:00:03 AM by Sluff » Logged
Zach
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"Still crazy after all these years."
« Reply #2 on: March 16, 2007, 06:12:16 AM »
Hey Adam, you have a great attitude!
Welcome to the community.
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
kimcanada
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« Reply #3 on: March 16, 2007, 06:56:16 AM »
:welcomesign; Adam

I love your name its my sons also

I will look forward to reading your technical slant on things :)

Kim
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Joe Paul
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« Reply #4 on: March 16, 2007, 08:27:34 AM »
Welcome Adam, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
RichardMEL
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« Reply #5 on: March 16, 2007, 08:40:02 AM »
G'day Adam, and welcome!

I'm like you.. I ask questions and like to have the machine where I can read it and bug the nurses if the pump speed is wrong (for me) or I want a profile or whatever...

In general I think they don't mind really. I once had a chat with one about if they felt I really bugged them about the details, or the lab results or whatever it was and they said no it was good to show an interest in your treatment... they felt it was better than some who were more in denial or didn't want to know what was going on.

For me, knowing what is happening and why helps me personally to feel more in control.. well not in control, but understanding of where I am at.. and that in turn helps me with understanding why I need to keep the fluid down, or to watch the diet etc etc.

Gee Adam, starting HD after being hit with a diagnosis like that just 4 days before would have been tough.. what a double whammy to suddenly find out you're in a bit of trouble and then you have to go on dialysis right away! I can't imagine that (I had years notice).

Welcome aboard!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #6 on: March 16, 2007, 08:57:31 AM »
Welcome to our community, Adam!  When someone who has lurked finally joins I know that we have someone who really appreciates the site, because you have taken the time to assess us.   But, NO FAIR!!! You get to see your machine.  My nurses do not like to turn the machine towards me.  My only recourse is to do what I saw another dialyzor (Bill Peckham's word) using a mirror.  That is what I do.  I only check 3 things, though - BP, pump speed, and TIME REMAINING!
I am looking forward to hearing from you.  We like members to post regularly.  Use this site to vent, when you need to.

Bajanne, Moderator
« Last Edit: March 16, 2007, 11:25:08 PM by bajanne2000 » Logged
"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
kelliOR
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« Reply #7 on: March 16, 2007, 09:14:55 AM »
Hello Adam,  Nice to meet you!
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Shoot for the Moon.....Even if you miss, you'll end up among the Stars ........


Denied PKD for years (Boy, was I good at it!)
Dragged kicking and screaming to dialysis (in center hemo)
Transplant from a friend March 24, 2006 at OHSU
Adam_W
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Me with Baron von Fresenius
« Reply #8 on: March 16, 2007, 09:16:48 AM »
Thanks to everybody for the welcome. Knowing what's going on with my treatment is one of the biggest things helping me through this. Although I won't be able to be in full control until I start home hemo, I at least have some influence in my treatment. I'm able to let the techs know if I have any unusual readings in my data, and I've been given authorization to reset my own alarms (depending on what they are for) so I don't have to wait 10 min. with the alarm beeping in my ear, waiting for a tech to get a chance to reset it (our centre is VERY understaffed). The main thing I don't like about my centre is there is no option for self-care. I'm probably the only patient there who has been given permission to even touch the machine. Well, anyway, it's good to be part of this site. Take care.

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
carson
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« Reply #9 on: March 16, 2007, 12:05:15 PM »
Welcome Adam,

You'll like it here. Everyone's very friendly and helpful!

By the way, your avatar almost made me faint!! I'm really  afraid of needles!!

 ::)
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2009 infection treated with Vancomycin and had permacath replaced
2009 septic infection that wouldn't go away
2007 began Nocturnal Home Hemo with Permacath
1997 began Peritoneal Dialysis
1982 had cadaver transplant
1981 diagnosed with GN2 and began Peritoneal Dialysis
billoggblog
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You Dialyse to Live....You Don't live to Dialyse!
« Reply #10 on: March 16, 2007, 06:17:48 PM »
:welcomesign; Andy, You have a real positive attitude!
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Yesterday is History..........Tomorrow is Mystery..........
Today is a Gift...That's why they call it Present.
kitkatz
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« Reply #11 on: March 16, 2007, 10:20:19 PM »
Welcome to the site.  There are a lot of answers out there.






kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
goofynina
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He is the love of my life......
« Reply #12 on: March 16, 2007, 10:57:45 PM »
Hey Adam, welcome to ihatedialysis.com,  I, too, enjoy your attitude and look forward to more posts.  I am also glad that you have taken interest in your treatments, i am sure with the some of the info you have learned in such the little time of being on hemo, you can help others here in some way.  I look forward to hearing more from you and if you have any questions, comment and/or concerns of your own, please do not hesitate to post them.  ;) 



Goofynina/Admin.
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....and i think to myself, what a wonderful world....

www.kidneyoogle.com
angela515
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i am awesome.
« Reply #13 on: March 18, 2007, 03:11:24 PM »
 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #14 on: March 19, 2007, 04:05:59 AM »
 :welcomesign;
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Ken
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #15 on: March 19, 2007, 10:40:03 PM »
 :waving; Hey Adam,
Nice to meet you!

Karol
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
carolyn77531
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« Reply #16 on: March 20, 2007, 10:30:43 AM »
hello Adam :welcomesign;
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YOU are stronger than you realize.
Wiser than you know.
What was once your life is now your legend.........
MyssAnne
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« Reply #17 on: March 20, 2007, 10:34:53 AM »
Hi Adam! Just had my hemo catheter (same place as yours!) taken out a couple of weeks ago, since my pd catheter was officially declared healed! I must say, it wasn't too bad doing hemo that way. I do prefer PD though! Welcome aboard!
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Phurball
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« Reply #18 on: April 04, 2007, 06:28:44 AM »
It is my distinct pleasure to tell you all that Adam W is my 25 year old grandson that I spoke of in my original introduction.

He is one of the deepest loves of my life, and I am soooooooo proud of him and the way he has handled this health crisis.

He is very smart, and I plan to learn alot from him when I start my own dialysis.  Dont tell him, but he is my hero.

I will make every attempt to NOT embarass him to badly on the boards LOL.

~ Cee / Nana




EDITED: Merged Thread - Sluff, Admin
« Last Edit: April 04, 2007, 06:39:43 AM by Sluff » Logged
We can do no great things, only small things with great love.


Fistula installed 04/11/07
Earlinda
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« Reply #19 on: April 28, 2007, 02:44:24 PM »
 :welcomesign; Adam!!!!  Glad to see you here.

Earlinda
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anja
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« Reply #20 on: April 28, 2007, 11:16:42 PM »
 :welcomesign;  to the community, Adam!
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st789
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« Reply #21 on: April 29, 2007, 02:51:01 PM »
Welcone to the site.  You will learn a lot.
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