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Author Topic: Score one for the Spaghetti Factory!  (Read 1870 times)
KarenInWA
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« on: February 09, 2015, 10:15:12 PM »
Score one for the Spaghetti Factory! I went there w/a friend for dinner tonight, ordered a raspberry vodka lemonade from the bar. Upon being led to my table, as I was walking up the ramp, a child sitting next to the ramp at her table turned her head towards me and coughed inches away from my drink. I explained to the waiter that I'm a transplant patient and didn't want to take any chances (also doesn't help that I'm dealing with increased levels of tacrolimus - currently on a low dose to bring it down). They comped me a new one, and even brought it in a clear plastic cup with a lid. I know how I'm going to order my drinks there from now on!

For those who may be wondering - the increased tacrolimus levels may have been caused by a GI drug called Dexilant. More details to follow as I find them out!

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
jeannea
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« Reply #1 on: February 10, 2015, 05:53:31 AM »
How fab that they listened to you. Asking nicely can go a long way. Definitely fill us in on the drug issue.
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