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Author Topic: Eating shellfish  (Read 4650 times)
Deanne
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« on: October 03, 2014, 07:39:07 AM »

I think I saw a message here before where someone said mussels aren't allowed after transplant. I've eaten mussels and other shellfish before I saw that message and my transplant center never told me not to eat them. What's the issue with mussels, and does it extend to clams? I want to try clamming tomorrow. I had some second thoughts about it, but after I thought more about it, it occurred to me that collecting my own clams is no different than eating them in a restaurant or picking them up from a grocery store. In fact, it might be safer since I'll know they're fresh. I still want to be sure I'm being safe though.

Any opinions on shellfish?

Thanks!
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
obsidianom
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« Reply #1 on: October 03, 2014, 07:49:54 AM »

I think I saw a message here before where someone said mussels aren't allowed after transplant. I've eaten mussels and other shellfish before I saw that message and my transplant center never told me not to eat them. What's the issue with mussels, and does it extend to clams? I want to try clamming tomorrow. I had some second thoughts about it, but after I thought more about it, it occurred to me that collecting my own clams is no different than eating them in a restaurant or picking them up from a grocery store. In fact, it might be safer since I'll know they're fresh. I still want to be sure I'm being safe though.

Any opinions on shellfish?

Thanks!
Clams being "bottom feeders" collect much toxin and bacteria. They are easily contaminated by sewage or other pollutants in the area they are harvested. So you really  need to know your environment .  Also clams are often not cooked enough. Toxins cannot be eleiminated by cooking however.
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
iolaire
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« Reply #2 on: October 03, 2014, 08:15:48 AM »

I think I saw a message here before where someone said mussels aren't allowed after transplant. I've eaten mussels and other shellfish before I saw that message and my transplant center never told me not to eat them. What's the issue with mussels, and does it extend to clams? I want to try clamming tomorrow. I had some second thoughts about it, but after I thought more about it, it occurred to me that collecting my own clams is no different than eating them in a restaurant or picking them up from a grocery store. In fact, it might be safer since I'll know they're fresh. I still want to be sure I'm being safe though.
This seems to be a case where thinking local, and knowing your food supplier might help you make your decision (or in your case harvesting your own food).  I grew up in Alaska which is quite rural and the poo is only from a few people and VERY dispersed across miles of water, I'd have much less concern about harvesting clams up there, versus somewhere near many more people - say in the Seattle area...  Just the same purchasing store bought shellfish from a farm in rural Maine sounds better than some generic shellfish from some generic farm in Chile...
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
Darthvadar
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« Reply #3 on: October 03, 2014, 08:50:22 AM »

When my late mum first went into Renal Failure, her Neph. advised against shellfish entirely... Too easy to get food poisoning from...

Wasn't any great hardship because she didn't like it anyway...

Darth...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
obsidianom
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« Reply #4 on: October 03, 2014, 09:50:15 AM »

I think I saw a message here before where someone said mussels aren't allowed after transplant. I've eaten mussels and other shellfish before I saw that message and my transplant center never told me not to eat them. What's the issue with mussels, and does it extend to clams? I want to try clamming tomorrow. I had some second thoughts about it, but after I thought more about it, it occurred to me that collecting my own clams is no different than eating them in a restaurant or picking them up from a grocery store. In fact, it might be safer since I'll know they're fresh. I still want to be sure I'm being safe though.
This seems to be a case where thinking local, and knowing your food supplier might help you make your decision (or in your case harvesting your own food).  I grew up in Alaska which is quite rural and the poo is only from a few people and VERY dispersed across miles of water, I'd have much less concern about harvesting clams up there, versus somewhere near many more people - say in the Seattle area...  Just the same purchasing store bought shellfish from a farm in rural Maine sounds better than some generic shellfish from some generic farm in Chile...
Even in rural New England we have had our share of red tide shellfish poisoning. There is plenty of environmental issues even in Maine and New Hampshire seacoasts.  There are few really clean places left in the lower 48. (right BOB?)
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My wife is the most important person in my life. Dialysis is an honor to do for her.
NxStage since June 2012 .
When not doing dialysis I am a physician ,for over 25 years now(not a nephrologist)

Any posting here should be used for informational purposes only . Talk to your own doctor about treatment decisions.
jeannea
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« Reply #5 on: October 03, 2014, 11:21:17 AM »

I don't like mussels or clams. I have eaten scallops and crab. I'm not sure what to say. Don't eat them raw?
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Deanne
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« Reply #6 on: October 03, 2014, 04:20:48 PM »

I won't eat anything raw. I remember my tx center saying that and I think they also specified oysters when they said nothing raw. Y'all kinda convinced me it'll be ok.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
Angiepkd
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« Reply #7 on: October 06, 2014, 06:47:35 PM »

Isn't it odd that all of us have different experiences with our transplant centers?  Wouldn't you think if shellfish were dangerous, that information would be universally distributed to all tx patients?  I have seen so much information here that was never given to me.  It would really be nice if we could get a rule book along with our new kidneys haha!  The more I research, the more confused I get.  I am using the "common sense" approach, along with asking my tx doc.  That book might be a good money maker for IHD.  We could all list what our individual transplant centers told us!
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
Deanne
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« Reply #8 on: October 06, 2014, 07:44:09 PM »

I went clamming Saturday and fried a couple clams to test them out. No sign of illness. Today I made clam chowder. Yum! Clamming was a blast and I can't wait to do it again. They test for red tide poisoning and have a phone number and website to make sure it's safe before going.
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
iolaire
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« Reply #9 on: October 07, 2014, 06:21:09 AM »

Isn't it odd that all of us have different experiences with our transplant centers?  Wouldn't you think if shellfish were dangerous, that information would be universally distributed to all tx patients?  I have seen so much information here that was never given to me.  It would really be nice if we could get a rule book along with our new kidneys haha!  The more I research, the more confused I get.  I am using the "common sense" approach, along with asking my tx doc.  That book might be a good money maker for IHD.  We could all list what our individual transplant centers told us!
Yes, recently I read the thread on Star Fruit being bad, I don't think I saw that anywhere - somehow I know grapefruit and grapefruit juice is bad for the kidneys but I never heard about Star Fruit - and you can be sure I eat a little when on vacation in some tropical place...
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
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