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Jess21
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« on: October 27, 2014, 03:27:28 PM »

Just got called to set up appointment to get evaluated for transplant. The soonest appt is in 3 months. :(
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
iolaire
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« Reply #1 on: October 27, 2014, 03:32:40 PM »

I've been on list for three years. I was called today to get my availability for an evaluation!  I was told the five hour process will now be required yearly. I wonder if it's part of the new listing methodology?

Anyway that could be the cause of the three month wait.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #2 on: October 27, 2014, 05:00:21 PM »

UCLA had us do a lot of the testing on our own, instead of doing it all at the center.
They no longer ask for gyno or dental clearance.
On the other hand, Scripps still does most of it in-house, and did request pap and dental.
Maybe you can ask what is covered on the evaluation. You could get some things, like immunizations, gyno and dental out of the way.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Jess21
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« Reply #3 on: October 27, 2014, 07:05:35 PM »

I have to get my records proving gyno, my X-rays/ct scans, and a dental clearance. Still 3 months down the road. Partly good cause it's a 2.5hr drive in good weather.
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
cattlekid
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« Reply #4 on: October 28, 2014, 06:19:53 AM »

Based on your signature, I'm guessing that you are in Chicago area and listing in Wisconsin (or vice versa?)  I didn't realize you had to be re-evaluated every so often. 

I do remember having to wait eight weeks for my first transplant intake meeting with Northwestern.  Then they told me that I had six weeks to get all of the testing done....I had it done in three.  Still took four months from the date of the first intake appointment before I got the letter telling me I was on their list.

I have to get my records proving gyno, my X-rays/ct scans, and a dental clearance. Still 3 months down the road. Partly good cause it's a 2.5hr drive in good weather.
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