Hello

malibu1

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Hello

« on: October 02, 2014, 05:41:30 AM »

My husband is back on dialysis after a cadaver transplant June 2012. He started hemo at home on Nxstage Nov 2009 using an AV Graft. Despite efforts to plan ahead and have a new access installed May this yr he now is using a chest catheter. A botched installation of an AV Graft and its subsequent removal, 8 surgeries in 10 weeks...we are finally at home after a 2 week brush up on Nxstage at our Davita. We are sitting at a cafe in New Orleans (vacation), trying to r & r or rather decompress after our 4 month hell we've just come out of. This too shall pass. So heĺlo all, hope to chat here, need some advice on some issues. I will post that in an appropriate area.


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cassandra

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When all else fails run in circles, shout loudly

Re: Hello

« Reply #1 on: October 02, 2014, 07:14:29 AM »

Welcome to the site malibu1

Take care, Cas


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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

still on waitinglist, still ok I think

iolaire

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Re: Hello

« Reply #2 on: October 02, 2014, 08:22:04 AM »

Quote from: malibu1 on October 02, 2014, 05:41:30 AM

A botched installation of an AV Graft and its subsequent removal, 8 surgeries in 10 weeks...we are finally at home after a 2 week brush up on Nxstage at our Davita. We are sitting at a cafe in New Orleans (vacation), trying to r & r or rather decompress after our 4 month hell we've just come out of.

Welcome, glad to see you were able to hit the road after your rough patch. I think you will find the site a wealth of support and information. I'm still in my first year of dialysis but I've found it convenient to travel with in center dialyses as long when your health is stable - I can only imagine how much simpler it is to be in control with Nxstage.


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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.

PrimeTimer

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Re: Hello

« Reply #3 on: October 02, 2014, 09:45:21 PM »

Welcome, malibu1! Sakes alive! You guys certainly HAVE been thru A LOT! The fact that you kept going and now getting some r & r says a lot about you tho. I am always amazed and inspired by others' stories, yours included.


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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.

Rerun

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Going through life tied to a chair!

Re: Hello

« Reply #4 on: October 04, 2014, 05:02:30 AM »

Hello and welcome to IHD. I'm so glad you found us. Lots of information to share here.

Rerun


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