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Author Topic: Your Life, Your Choice: Stories from Kidney Transplant Patients and Donors  (Read 2251 times)
Meinuk
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« on: October 01, 2014, 11:11:34 AM »

You can read these stories online: http://esrdncc.org/wp-content/uploads/2014/09/Your_Life_Your_Choice.pdf

Your Life, Your Choice: Stories from Kidney Transplant Patients and Donors

These are the stories of real kidney transplant patients in their own words. The stories were developed to help address what patients perceive as barriers to receiving a kidney transplant, including age, gender, race or ethnicity, and location.

This booklet was created to inspire hope for End-Stage Renal Disease (ESRD) patients, their family members, and caregivers. The patients in these stories live in different parts of the country, from East Coast toWest Coast and New England to the South. This publication is designed to motivate and empower ESRD patients to explore all treatment modality options, including kidney transplant. The road to transplant begins with referral.

This booklet was produced by the End-Stage Renal Disease (ESRD) Network Coordinating Center (NCC) in collaboration with these ESRD Networks:
Intermountain End-Stage Renal Disease Network (Network 15)
IPRO ESRD Network of New England (Network 1)
IPRO ESRD Network of New York (Network 2)
Network 8, Inc.
Quality Insights Renal Network 4
Southeastern Kidney Council, Inc. (Network 6)
Western Pacific Renal Network, LLC (Network 17)

We are also grateful to the patients and donors who graciously shared their stories.
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
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