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mcoanarmen1
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« on: July 15, 2014, 05:21:18 AM »
Greetings to all brave dialysis folks,

You need to have a lot a fight in you to go through the bumps of daily dialysis life. I am going on 26 years of dialysis and I feel I am loosing the battle but will continue to fight with what I have left.
I appreciate this opportunity to have this forum to meet and talk to other folks that go through the same challenges I have and hope to use this tool to attain more knowledge. You would think I would be up to speed with most subjects but just not the case.

I have worked full time during all my years on dialysis but recently have gotten to a point where I can no longer perform my job at a high level that I am used to, so I finally stopped working and started home dialysis with the hope of getting better or stronger.

Anyway, thanks for listening and hope to talk again soon.
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MooseMom
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« Reply #1 on: July 15, 2014, 07:48:39 AM »
Wow!  Over two decades on dialysis!  You have so much experience to offer to our members.  Thank you so much for joining!  I'm sure you will find a lot of members who would be very helpful to you.  Lots of smart and well informed people here.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Ninanna
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« Reply #2 on: July 15, 2014, 09:39:37 AM »
Welcome! 26 years is a long time!  Post often and I look forward to hearing more from you!
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Spring 2006 - Diagnosed with IgA nephropathy
June 2013 - Listed on transplant list
Feb 4th 2014 - Kidney and bone marrow tx (both from my mother) as part of a clinical trial at Hopkins
Bambino_Bear
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« Reply #3 on: July 15, 2014, 06:18:30 PM »
 :welcomesign;
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I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
LisaBart
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« Reply #4 on: July 15, 2014, 09:07:00 PM »
You will be an inspiration to many .
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PrimeTimer
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« Reply #5 on: July 16, 2014, 12:06:31 AM »
Welcome, Mcoanarmen1! Reading your story, maybe I am not in my prime time after all. With you here, looks like we have more life to look forward to. Thanks!   :welcomesign;
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
Poppylicious
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« Reply #6 on: July 16, 2014, 01:19:55 AM »
Hello mcoanarmen1 and  :welcomesign; to the forum!  Fabulous to have you on board ... I'm sure you'll be a valuable asset with all your experience.  Post often - share the good and the bad!

Poppylicious, Moderator
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Big E
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« Reply #7 on: July 16, 2014, 10:53:31 AM »
26 years on dialysis, and working full time besides!  That takes a special kind of person.  So glad you decided to join us here at IHD.
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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
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