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Author Topic: Hello, first time posting  (Read 3555 times)
mrstrekkie84
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« on: June 23, 2014, 04:20:01 PM »
My husband was diagnosed with something called IGA nephropathy resulting in renal failure 2 years ago, at the age of 30. We had been married a little over a year at the time and needless to say, his diagnosis turned our lives upside down. We are approaching our 3rd wedding anniversary and in the past 2 years, we have had our ups and down. I look forward to meet other young caretakers and also young renal patients.
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Ninanna
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« Reply #1 on: June 23, 2014, 05:22:51 PM »
Hi and welcome!  I too have IgA (I turn 30 this year). I'm glad you found us and I look forward to getting to know you better!
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Spring 2006 - Diagnosed with IgA nephropathy
June 2013 - Listed on transplant list
Feb 4th 2014 - Kidney and bone marrow tx (both from my mother) as part of a clinical trial at Hopkins
Rerun
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Going through life tied to a chair!
« Reply #2 on: June 23, 2014, 08:46:59 PM »
Hi Mrstrekkkie84 and welcome to IHD.  It is hard when you are young.  What does a transplant look like for his future?  Can he still hold down a job?  Some can and come can't.  What state are you from?

Rerun, Admin   :welcomesign;
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Bambino_Bear
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« Reply #3 on: June 23, 2014, 11:31:16 PM »
 :welcomesign; IHD!

I am also a caregiver.  My husband is 34.  We do PD and it works great for us.  If you need to talk or vent feel free to message me. 

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I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
lainiepop
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« Reply #4 on: June 23, 2014, 11:56:12 PM »
Hi, welcome. I am 32 and am the kidney patient, I have had issues all my life. Been married to my hubby for 9 yrs next week. We have a son age 6 and a daughter age 3 and my dad donated a kidney to me 2 years ago.

Does you husband do dialysis at the moment?

Marie
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1982 - born with one imperfect kidney and no bladder, parents told i would not survive
1984 - urostomy op
1990 - bladder built out of colon
2007 - birth of son, gfr fall from 3O to 26
July2011 - birth of prem daughter, gfr 17%
August2011 - gfr drop to 10%
29th May2012 - RECEIVED KIDNEY 4/6 match from my wonderful dad !
Darthvadar
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« Reply #5 on: June 24, 2014, 12:45:06 AM »
Hello mrstrekkie84 , and  :welcomesign; to IHD...

Was caring for my mum for seven years, so I fully appreciate your life right now....

Post often... We're here for each other....

Darth, Moderator...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Poppylicious
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« Reply #6 on: June 24, 2014, 12:33:09 PM »
Hello mrstrekkie, and a big  :welcomesign; to ihd.com!

Myself and Blokey had only been married for about eighteen months when we discovered he had kidney related health problems in his early thirties.  Grrr ... it does mess up future plans somewhat!  Pop in often to vent or laugh.

 ;D

Poppylicious, Moderator
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
julies1963
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« Reply #7 on: June 24, 2014, 12:55:59 PM »
Hello and welcome!  God Bless!!!
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mrstrekkie84
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« Reply #8 on: June 26, 2014, 02:13:25 PM »
Thank you for the warm welcome. We live in Houston, TX. The Hubby was on peritoneal dialysis until recently, but had to quit because of recurring peritonitis. 2 days ago, on our 3rd anniversary, he underwent a procedure to remove the PD catheter and replace it with a hemodialysis catheter. Unfortunately, there were some complications and we are in the ICU right now. Renal failure and dialysis have been the dark cloud hanging over our otherwise happy marriage. But I am glad to know that there are other young couples dealing with the same issue. I am praying to get this over with soon so we can get back to our lives.
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julies1963
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« Reply #9 on: July 02, 2014, 06:20:41 PM »
Hello and welcome!  God Bless
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