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staticlyme
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« on: March 23, 2014, 05:08:43 PM »
Hello(: My name is Heather, I'm 20 years old and from Washington state. Dialysis is a very new thing for me. I started it at the end of February this year. So I'm very excited to have found this website. I'm not totally sure what I'm doing yet or what certain things even mean since my diagnoses was so random and unexpected. I actually was hospitalized for emergency hypertension for two weeks, took about week in the ICU before they realized my kidneys were failing.  Hopefully this website will answer some questions and ease all my nerves.
A couple facts about me.. I attend in-clinic nocturnal 3X a week for 8 hours, diagnosed with ESRD and IgA nephroapathy. Using a catheter in my chest, only for temporary use.  Born with ureter reflux which I had two surgeries for when I was 6 months and 2 years old and had not been hospitalized since for kidney issues. Also became legally blind in my left eye because of my hypertension becoming so out of hand.
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MooseMom
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« Reply #1 on: March 23, 2014, 05:34:39 PM »
Hi!  I'm glad you found us and decided to join the site.  Please feel free to ask any questions, and we will do our best to give you our best answers.  I am sorry you've had to go through this at such a young age.  I am happy, though, that you have access to in-clinic nocturnal dialysis.  That's not a treatment option that is available as widely as we'd like, so congratulations for THAT!   :thumbup;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
SooMK
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« Reply #2 on: March 23, 2014, 07:21:50 PM »
Welcome!
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
Darthvadar
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« Reply #3 on: March 23, 2014, 07:23:12 PM »
Hello Heather....

You're very  :welcomesign; to IHD.....

You'll like it here, I think, and will get lots of support and reliable information...

Visit and post often... Let's get to know each other!...

Darth, Moderator....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Bambino_Bear
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« Reply #4 on: March 24, 2014, 01:41:17 AM »
  :welcomesign; Heather
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I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
Mr. B 123
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« Reply #5 on: March 25, 2014, 09:51:48 PM »
Welcome, hope you are doing well, all things considered.
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Honor God, work hard, and keep show'in up.
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shayron1982
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1 Corinthians 13
« Reply #6 on: March 31, 2014, 11:11:27 PM »
Hello Heather. Welcome to the site  :flower; I am 32 years old now, but was 21 when 1st diagnosed. I am sorry to hear that all this has happened to you so suddenly, but you sound positive & I promise that is the most important part of the puzzle when it comes to dealing with all this confusing dialysis info. I would be happy to answer any questions you have and maybe we can learn a few things together since I only started PD 2/1/14. Best wishes.
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~Sharon~
Diagnosed with FSGS 2003
AV Fistula upper right arm 2007
On transplant list @ MUSC 2008
PD Cath placed 2013
Started PD at home 2014
CalamityEC
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« Reply #7 on: April 01, 2014, 05:40:33 AM »
Welcome.  I'm glad they figured out what was wrong and you found this site :)
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"In three words I can sum up everything I've learned about life: it goes on." ~Frost

"Sometimes I've believed as many as six impossible things before breakfast." Alice's Adventures in Wonderland
talker
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« Reply #8 on: April 06, 2014, 07:20:50 AM »
With some, or at least with many life issues/ we'd like to  :Kit n Stik;

That being said staticlyme,  :welcomesign;

talker
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Be Well

"Wabi-sabi nurtures the authentic by acknowledging three simple realities: nothing lasts, nothing is finished, and nothing is perfect."

Don't ever give up hope, expect a miracle, pray as if you were going to die the next moment in time, but live life as if you were going to live forever."

A wise man once said, "Yesterday's the past, tomorrow's the future, but today is a gift. That's why it's called the present."
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