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Author Topic: Introducing Jeannie  (Read 2378 times)
Alifetime
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« on: February 14, 2019, 01:33:54 AM »
My name is Jeannie. I was born with a congenital birth defect that caused reflux neuropathy.  I'm 59 and NIH told my parents that I wouldn't live to be 13!!  So I am currently 2 weeks in to perotineal dialysis after losing my second transplant after19 years.  I am struggling with dialysis.  Love that I can do it from home but since Christmas lost 30 pounds.  I am extremely weak with no appetite.  I have also hurt my back lifting the 6 liters of fluid from their boxes!  So I'm happy to be here but I too hate dialysis!




Split and moved to Introducing yourself- kitkatz. Admin
« Last Edit: February 14, 2019, 06:32:55 PM by kitkatz » Logged
Kathymac2
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« Reply #1 on: February 14, 2019, 07:20:43 PM »
Hi Jeannie. Your post resonated with me because I am training now for PD.  It is hard enough to start dialysis. It must be crushing to have to go to dialysis after losing a long-term transplant. Maybe your appetite will return some after you get better established on PD. 

All my best wishes for you to be feeling better soon.

Kathy
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Paul
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That's another fine TARDIS you got me into Stanley
« Reply #2 on: February 14, 2019, 11:48:51 PM »
 :welcomesign;

Hello Jeannie, welcome to the site.
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
cassandra
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When all else fails run in circles, shout loudly
« Reply #3 on: February 15, 2019, 08:00:24 AM »
Welcome to the site Jeannie


   :welcomesign;


Take care, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
LorinnPKD
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« Reply #4 on: February 16, 2019, 10:23:44 PM »
Jeannie, welcome!
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