Sensipar

[Punkybruister84]

Anyone else get really sick from this medication? I have been really sick from it. The pd nurse told me to stop taking it. The dr said that they may want to remove my glands, he says that after transplant they usually remove them anyway. Thing is , I don't have the money for more surgery. I'm still trying to get Medicaid.  Is it true though, do they remove your pt glands when transplanted?

[jeannea]

I've had 2 transplants. No one ever mentioned removing my parathyroid glands. I thought they were only removed for people on dialysis whose numbers can't be controlled in normal range.

[obsidianom]

The following is the general basis of parathyroidectomy:

"Parathyroidectomy should be recommended in patients with severe hyperparathyroidism (persistent serum levels of intact parathyroid hormone >800 picograms/mL), associated with hypercalcemia and/or hyperphosphatemia that are refractory to medical therapy.

Effective surgical therapy can be accomplished by subtotal parathyroidectomy or total parathyroidectomy with parathyroid tissue auto-transplantation (primary or delayed"

So it is likely your parathyroid glands are enlarged if your doctor is talking removal. A transplant wont cure the problem if they are too enlarged and causing problems. 

Why dont you have medicare insurance if you are a PD patient?

[Punkybruister84]

I have Medicare, it's Medicaid that I don't have. There's a really long story about my health insurance issues. But long story short I used to have blue cross and blue shield I crossed state lines into New York in 2009 to get transplanted there. I had everything ready a donor everything. But the coordinator told me they don't  accept my insurance and that if I switch to basic Medicare it would cover everything. So me being stupid. I did, and now no hospital wants to really deal with me until I have a suplimental. I tried for Medicaid before and was denied. So now I'm trying again under the NHL workability program. I still have a donor but its not the same person. As long as this gets done that's all I care about.

[pdpatty]

Take it at night before bed. It made me sick when I took it in the morning and my doc said to take it at night. Sleep thru sickness.

[iolaire]

now no hospital wants to really deal with me until I have a suplimental. I tried for Medicaid before and was denied. So now I'm trying again under the NHL workability program.

Have you tried since the universal healthcare act started to take effect?  I though denial due to pre existing condition was one thing already phased out by the law and the health exchanges? (I could be wrong.)