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| | |-+  Well, it's official... I'm no longer a Carer.....
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Author Topic: Well, it's official... I'm no longer a Carer.....  (Read 5333 times)
Darthvadar
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« on: April 02, 2014, 01:33:01 PM »

Hi All...

Today, I had to phone the Department of Social Protection this morning, and forfeit my Carers Allowance payment... This payment stops being payable if the person being cared for is in a hospital or Nursing Home for thirteen weeks... Mum is in hospital for thirteen weeks today, so I had to make the call....

Besides the fact that my income has dropped by a third, and the household income is down by more than 60% (Most of Mum's pension goes for her care after thirteen weeks), it's the feeling of losing my caring status that hits harder... Didn't help when a genius said to me 'Well, you're now free of that burden!'... What I didn't say to him wasn't worth saying, and what I did tell him to do is not repeatable on a family forum!....

Had a meeting with the Social Worker today... We're doing the paperwork for her transfer to a nursing home... I HATE this!... Mum is heartbroken, and I can't do anything about it!...

Life's a b***h sometimes, and right now, she has puppies!....

Love to all...

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
Zach
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"Still crazy after all these years."

« Reply #1 on: April 02, 2014, 02:06:15 PM »

 :cuddle;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
talker
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« Reply #2 on: April 02, 2014, 02:07:34 PM »

Hi All...

Today, I had to phone the Department of Social Protection this morning, and forfeit my Carers Allowance payment... This payment stops being payable if the person being cared for is in a hospital or Nursing Home for thirteen weeks... Mum is in hospital for thirteen weeks today, so I had to make the call....

Besides the fact that my income has dropped by a third, and the household income is down by more than 60% (Most of Mum's pension goes for her care after thirteen weeks), it's the feeling of losing my caring status that hits harder... Didn't help when a genius said to me 'Well, you're now free of that burden!'... What I didn't say to him wasn't worth saying, and what I did tell him to do is not repeatable on a family forum!....

Had a meeting with the Social Worker today... We're doing the paperwork for her transfer to a nursing home... I HATE this!... Mum is heartbroken, and I can't do anything about it!...

Life's a b***h sometimes, and right now, she has puppies!....

Love to all...

Darth....

   
Times it seems the wind is no longer at me back,
i'm at the bottom of every hill, no top in sight,
straight paths are now all twisted,
loved one is going away, to an unwelcoming elsewhere.
Dislike when as a talker, words fail to say what needs saying,
Yet, from some where, the strength to bear up will eventually arrive.
Till then and after, my prayers be with you
 

talker
« Last Edit: April 02, 2014, 02:10:46 PM by talker » Logged

Be Well

"Wabi-sabi nurtures the authentic by acknowledging three simple realities: nothing lasts, nothing is finished, and nothing is perfect."

Don't ever give up hope, expect a miracle, pray as if you were going to die the next moment in time, but live life as if you were going to live forever."

A wise man once said, "Yesterday's the past, tomorrow's the future, but today is a gift. That's why it's called the present."
MooseMom
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« Reply #3 on: April 02, 2014, 02:48:23 PM »

As long as your dear mum is alive, you will be a carer.   :cuddle;
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
thegrammalady
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« Reply #4 on: April 03, 2014, 09:46:26 AM »

 You are still loved Carolyn. And even tho your Mum is sad about this development in her life she knows you love her and will always care.
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willowtreewren
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« Reply #5 on: April 03, 2014, 01:07:14 PM »

I know this is a blow, even more emotional than financial. I'm glad you still have your mum, though. Many hugs dear Darth.

Face the sun so you see no shadows.  :grouphug;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
billybags
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« Reply #6 on: April 04, 2014, 01:45:15 AM »

Darth you will always be a carer for your mum. I am sorry your mum has to go in a home and you know she will hate it . It is one of those things, we all care for our loved ones when they are ill, but we can only do so much. Is the nursing home very far from you? Lots of hugs to you and your mum
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