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Author Topic: Los Angeles or SoCal Residents....  (Read 4081 times)
Madelaine
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« on: April 01, 2014, 02:28:34 PM »
Hello,

My name is Madelaine and I am a producer for a local news station here in Los Angeles.

I am working on a story about organ transplants and was wondering if anyone would like to do an on camera interview regarding this topic; specifically i would like to talk to to someone about what is it like being on such a long waiting list for a kidney transplant and why someone might look to black market organs, or otherwise less legal (tho in my opinion no less ethical if both parties are willing) options. If you would like more information please send me a message or respond to this post.

Thank you,

Madelaine
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Darthvadar
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« Reply #1 on: April 01, 2014, 03:53:00 PM »
Hi Madeline...

You're very  :welcomesign; to IHD....

You're bound to meet several local people on this site...

Hope to see you visiting often....

Darth, Moderator...
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
cdwbrooklyn
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« Reply #2 on: April 03, 2014, 07:37:06 AM »
Madeline, are you willing to fly me to LA from NY?  If so, I don't mind sharing.
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
Zach
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« Reply #3 on: April 03, 2014, 07:55:05 AM »
Quote from: cdwbrooklyn on April 03, 2014, 07:37:06 AM

Madeline, are you willing to fly me to LA from NY?  If so, I don't mind sharing.


 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Madelaine
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« Reply #4 on: April 03, 2014, 11:33:47 AM »
Quote from: cdwbrooklyn on April 03, 2014, 07:37:06 AM
Madeline, are you willing to fly me to LA from NY?  If so, I don't mind sharing.

I wish we had that kind of budget!!
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A.everett81
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« Reply #5 on: April 03, 2014, 07:39:31 PM »
Hi, I live in Southern California.  The Inland Empire more specifically. I may be interested in this.
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talker
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« Reply #6 on: April 06, 2014, 07:47:23 AM »
Quote from: Madelaine on April 01, 2014, 02:28:34 PM
Hello,

My name is Madelaine and I am a producer for a local news station here in Los Angeles.

I am working on a story about organ transplants and was wondering if anyone would like to do an on camera interview regarding this topic; specifically i would like to talk to to someone about what is it like being on such a long waiting list for a kidney transplant and why someone might look to black market organs, or otherwise less legal (tho in my opinion no less ethical if both parties are willing) options. If you would like more information please send me a message or respond to this post.

Thank you,

Madelaine

Hi Madelaine  :grouphug;    :welcomesign;

That you find a willing person to share experiences for that upcoming interview on about organ transplants. :2thumbsup;
 
And success to you on the project.

talker
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Be Well

"Wabi-sabi nurtures the authentic by acknowledging three simple realities: nothing lasts, nothing is finished, and nothing is perfect."

Don't ever give up hope, expect a miracle, pray as if you were going to die the next moment in time, but live life as if you were going to live forever."

A wise man once said, "Yesterday's the past, tomorrow's the future, but today is a gift. That's why it's called the present."
Charlie B53
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« Reply #7 on: April 06, 2014, 02:37:18 PM »

Then there are those of us unwilling to consider a transplant for fear of the anti-rejection medications, loosing are immunity to infection from most everything.  Not to mention some of the sickening side effects of the meds.

No thank you, I will stay on PD, it is working well for me.  I feel so much better than I have for a number of years.

I don't know how much of a 'black market' you may uncover.  Surgeries can get costly, leaving many unable to even consider 'purchasing' a kidney, and the continuing medication required to keep from rejecting that kidney.  I would be willing to bet that most of the kidney black market for a large part is only urban legend.  Very small, if at all.

The extended wait time for a suitable donor is the largest problem.  Spreading the word, that there are thousands of people waiting, many dying before a good match is to be found.

The serious need is for people to at least consider donating once their time is done, cut short by accidents,  How their simple gesture of donating can save another life and that small part of them will be remembered.  Kidney recipients are  very grateful for the opportunity to be relieved of dialysis and once again have somewhat more 'normal' chance at life.

I wish you well and Good Luck putting together your program.

Charlie B
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