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Author Topic: My Transplant story  (Read 2377 times)
billoggblog
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You Dialyse to Live....You Don't live to Dialyse!

« on: February 19, 2007, 12:14:15 PM »

Back in 1995 I was on Haemodialysis, and working full time 40-45Hrs. per weak.
On Tuesday's and Thursday's I would go into unit at 10pm, set up and start dialysis by 11pm, then I would TRY and get some sleep. At about 4am a nurse would come in and wake me, remove needles,  I would then go back to sleep. At about 6.30am a nurse would be back with tea and toast (talk about breakfast in bed) then it's a quick shower, dressed and it's off to work by 8am. This went on for 2 Hard years, but I was determined to keep as normal a life as possible!!!
On Xmas eve I woke up at 6.30 as usual, but no work that day, so I decided to get dressed and get home to my own bed for a long lie. On arriving home I received a phone call from the hospital, could you come back straight away,  what have I done? left something behind I just couldn't think, just wanted my bed.
So it's back I go and decide that my partner should come just in-case it's important. And It Was!!! we've got a kidney and it's a perfect match, on Xmas day I went for the best present I have ever been given. A PEE!!!!

Life's Good!! not quite as active as pre. dialysis, but pretty close.
Had to go into hospital once, because of a rejection scare about 4 months after transplant, apart from that it's pretty smooth, regular clinic appointments a strict medicine regime and told to drink 4ltrs of water per day, sounds good ,but when you were on a 600ml restriction for two years this is Hard!! water is needed to flush out kidneys ???

About two and half years later it was decided that we would go on our first holiday abroad together, I met my partner when I became ill (that's another story, I'll keep that one for later). At the end of that year we went off to Tenerife, Nearing the end of the holiday I decided to climb Mount Teide (3,718meters) I'm not that daft, I took the train to the 3/4 point and climbed the rest and back to the bottom, during the walk I drank 4ltrs of water and another 2 for the rest of the day, Oh boy did I Pee!!!
The next morning when I woke my ankles were wider than my thighs and no trips to the loo! as you can imagine fear and panic took hold and it was home and straight into hospital  for a myriad of  tests, renal function deteriorating, some pretty serious drugs, but alas to no avail. Told by specialist the dehydration was probably the catalysts, but it was revealed that the kidney had been slightly damaged during transplant and it was probably just a matter of time.
By March of the following year it's back onto Haemo for six months then started APD, where I am now!!! :(
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Yesterday is History..........Tomorrow is Mystery..........
Today is a Gift...That's why they call it Present.
Sluff
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« Reply #1 on: February 19, 2007, 03:28:47 PM »

Thanks for sharing your story billoggblog.
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joanna2007
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« Reply #2 on: March 12, 2007, 12:44:03 PM »

Bill, your story confirms what I had suspected for the last 25 years.  In 1982 my husband and I had hiked the Grand Canyon and I was 'completely' exhausted when I got back to the room.  Then my ankles swelled up with pitting edema, felt tired, but we continued our vacation. After I came home and after many tests and doctors, finally a bioposy showed I had membranous glomular nephritis.  They put me on predisone for 3 months, then just had to watch my BP and go back for yearly visits. 

Until my GFR dropped to 13% I was completely 'ho hum' about my little kidney problem.  The doctors never said it was caused by the hike, but I think I must have become dehydrated and damaged my kidneys.

I was just completed all of the testing and was listed last month on the transplant list

Currently, I'm pre-dialysis and not on any diet restrictions from the neph.  On my own I just started limiting my protein and quit drinking diet colas.  (big sacrifice)

What was the cause of your original kidney failure?   If you were like me I would have never have known I had a problem without that one 'pitting edema' episode. The last 25 years I really haven't had any symptoms or problems.  I'm fortunate that it was discovered early and I at least keep my BP in check and I saw my neph once a year. (To watch my GFR slowly drop.....gave me time to prepare otherwise, I would have just one day woken up with ESRD)

I just joined IHD last week and I'm enjoying reading all everyone's introductions.

                 Joanna
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This is the day that the Lord has made, let us rejoice and be glad in it.
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« Reply #3 on: March 20, 2007, 04:22:32 AM »

Sorry to hear of your bad experiences after your hikes. I will certainly keep that in mind after my transplant, and monitor my exercise programs very carefully.

I do most of my exercise at home, with a dvd, so I'm pretty unadventurous anyway.  :D

but it's always good to consider anecdotes such as these, I believe.
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