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| | |-+  The love of my life has gone
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Author Topic: The love of my life has gone  (Read 6056 times)
SooMK
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« Reply #25 on: January 04, 2014, 06:33:31 PM »

So very sorry.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
boswife
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us and fam easter 2013

« Reply #26 on: January 05, 2014, 07:30:33 PM »

Im so sorry to hear this news billybags... I dont come on here much, almost not at all.  It just hurts to much.  But i did 'look in' today, and saw this.  The sadness your feeling i understand.  It's been 5 months for me, but through the grace of God, im doing well.  You may not want to hear this, this word 'journey' but dear lady, this journey that you will be taking is one that you will make it through.  Give it your all, cry as much as you feel it, let yourself do just what you need to do to make you alright.  Sent with love and understanding.. jill  aka boswife
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
BobN
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« Reply #27 on: January 06, 2014, 09:49:40 AM »

Condolences Ann.
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www.bobnortham.com
Author of The ABC's of the Big D: My Life on Dialysis
Bob's Prescription for Living With Dialysis:
Follow Your Recommended Diet and Especially Watch Your Potassium, Phosphorous, and Fluid.
Stay Active - Find a Form of Exercise You Like and DO IT!!
Laugh Every Chance You Get.
cdwbrooklyn
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Positive Thoughts equal Positive Energy

« Reply #28 on: January 06, 2014, 01:43:28 PM »

My condolences Ann.  So sorry to hear about your loss especially when it's hard to meet a good man.
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
Wildrose
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« Reply #29 on: January 08, 2014, 12:43:33 AM »

I'm so sorry for your loss.  :grouphug;
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1995 - Diagnosed with 'some kind' of kidney disease during first pregnancy at 16 yrs old due to excess protein in urine
1998 - Biopsy diagnosis of IGA Nephropathy at age 18
2007 - Successful second pregnancy, creatnine of 1.8 something
2009 - Successful third pregnancy creatnine of 2 something
2009-November of 2011 - Somehow went from Creatnine of 2 something to 5.43
November 2011 - Diagnosed with End Stage Renal Disease
3/28/12 - Started Peritoneal Dialysis
5/21/12 - Ended up in hospital for 5 days with PD fluid leaking through hole in diaphragm to right lung
5/25/12 - IJ catheter placed, 5/26/12 - First in center hemo treatment
6/15/12 - Back on PD for three weeks and hemo at same time, 7/7/12 - PD fluid leaked again, off PD and still on hemo, 7/15/12 - on PD again and hemo
7/23/12 - chest xray shows fluid leak again, off PD for one month with possible thoracic surgery in future to fix hole in diaphragm. 5.70 creatnine
8/7/12 - 24 hr urine test shows improved kidney function. 3.47 creatnine - Dr reduced hemodialysis from 3x's to 2xs a week.
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