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Topic: Hi everyone! (Read 2733 times)
snp_ethan
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Hi everyone!
«
on:
March 12, 2007, 02:01:45 AM »
Hello to everyone,
Im new to the whole dialysis scene.
as a matter of fact, I want to learn about kidney failure as much as I can.
I got a friend who has had kidney failure since he was 9 and I'd like to help him. After my friend, my grandfather was diagnosed with kidney failure as well, and I had to take him to the hospital. I would like to see all of you get better.
I am a student at the University of California and I am doing research to develop a dialysis machine that would allow patients to take dialysis home.
but as I stand right now, I cant do much, which is why I'll be reading voraciously all I can in here to learn more and more and help the whole community.
Please help me out!
Pablo
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aharris2
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Volcan Pacaya, Guatemala
Re: Hi everyone!
«
Reply #1 on:
March 12, 2007, 04:08:03 AM »
hi Pablo and welcome to the comunity, this is a place in where to ask all your questions, it is a good fountain of information...
so you wanna develop a machine to take home and dialyzes huh? well I'm sorry to say someone beat you to it back in 1969 lol, there's a machine called the nxstage nowadays to do just that, but if you can come up with a machine that is portable and easy to carry everywhere, you would be doing the renal community a big favor.
good luck in your endeavor and ask away, we'll be happy to help you...
take care
Rolando
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend
Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
Sluff
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Re: Hi everyone!
«
Reply #2 on:
March 12, 2007, 06:40:42 AM »
Hello Pablo,
Welcome to IHD, you are a good friend to take an interest in kidney failure and dialysis. A lot of people don't even know what dialysis is much less taking an interest in it.
Here is a link to a machine called the nxstage where members here discuss the machine and it's versatility.
http://ihatedialysis.com/forum/index.php?board=37.0
We also have a website designated to the nxstage here:
www.ilovenxstage.com
Hope you enjoy your stay here at IHD.
Sluff, Administrator
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joanna2007
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Re: Hi everyone!
«
Reply #3 on:
March 12, 2007, 07:54:15 AM »
This site has a 'wealth' of information on it.
Joanna
«
Last Edit: March 12, 2007, 08:05:26 AM by joanna2007
»
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This is the day that the Lord has made, let us rejoice and be glad in it.
Joanna
angela515
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i am awesome.
Re: Hi everyone!
«
Reply #4 on:
March 12, 2007, 08:06:10 AM »
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Earlinda
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Re: Hi everyone!
«
Reply #5 on:
March 12, 2007, 09:50:02 AM »
Welcome!!! I am looking forward to reading your posts. I am interested to know if you are working to develop a very portable machine. The NxStage weighs about 75 lbs or so and although it is portable it would be wonderful to have something even more travel worthy.
Earlinda
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snp_ethan
Newbie
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Re: Hi everyone!
«
Reply #6 on:
March 12, 2007, 05:31:56 PM »
Wow, feels good to know that the community is so open!
I am trying to develop a machine that would allow mobile dialysis.so, Im looking for all the input possible from everyone, the little and the large, the details and the obvious!
thank you every one!
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Joe Paul
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Re: Hi everyone!
«
Reply #7 on:
March 12, 2007, 10:10:26 PM »
Welcome snp_ethan , good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten
Re: Hi everyone!
«
Reply #8 on:
March 12, 2007, 10:59:57 PM »
Welcome to our community! You have made the right choice in checking with those who are living this challenge. Of course, we would be willing to help anything that makes life a bit more comfortable and practical for those on dialysis. I am living in a region where the only real choice is in-centre haemodialysis, but I do love to hear of all the progress that is being made in other types of dialysis.
Welcome again.
Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"
I LOVE my IHD family!
anja
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Re: Hi everyone!
«
Reply #9 on:
March 13, 2007, 08:57:27 PM »
snp_ethan to the community!
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Zach
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"Still crazy after all these years."
Re: Hi everyone!
«
Reply #10 on:
March 15, 2007, 09:53:17 AM »
Good to have you in our community!
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.
I make films.
Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600; Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day.
"Living a life, not an apology."
carolyn77531
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Re: Hi everyone!
«
Reply #11 on:
March 15, 2007, 09:57:37 AM »
...my daughter is on baxter...its very portable...but...wish there was something would weigh less.....i just hate it when u go anywhere to stay the night...all those supplies and bags to carry
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YOU are stronger than you realize.
Wiser than you know.
What was once your life is now your legend.........
kitkatz
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Re: Hi everyone!
«
Reply #12 on:
March 15, 2007, 04:15:41 PM »
This group will be glad to answer questions for you. I am sure many questions will be answered as you read through the board!Welcome! There is a caregiver section for people who support patients.
kitkatz, moderator
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lifenotonthelist.com
Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
billoggblog
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You Dialyse to Live....You Don't live to Dialyse!
Re: Hi everyone!
«
Reply #13 on:
March 16, 2007, 06:33:43 PM »
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Yesterday is History..........Tomorrow is Mystery..........
Today is a Gift...That's why they call it Present.
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