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Author Topic: Hello from Virginia  (Read 4149 times)
moodyc
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« on: October 16, 2013, 06:29:14 AM »
My husband has  been a dialysis patient on NxStage since May.  We went through two months of training. He is very frustrated with the machine.  After three months, he's thinking of going back to in-center because of the alarms that keep going off while he is on the machine dialyzing.  He has a catheter, and we keep getting red 11 and red 21 alarms.  Last night it happened automatically every hour, no matter which way he layed in the bed. We go to his doctor today, and will mention this, to see if we need to get a new machine. I put him on the machine after I get home from work and he does it 5 times a week for 4 hours.
« Last Edit: October 16, 2013, 06:53:24 AM by moodyc » Logged
Bambino_Bear
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« Reply #1 on: October 16, 2013, 08:26:45 AM »
 :welcomesign;
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I am a caregiver to my wonderful husband,  He is 4p and started PD October 2013. We have several living donors waiting to be tested for a transplant. Dialysis is a bridge to get us where we need to go. 
He had a transplant in November 2019.
Poppylicious
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« Reply #2 on: October 18, 2013, 09:00:50 AM »
 :welcomesign; moodyc! Sorry that hubby is having so much trouble.  What was the outcome when you mentioned it to the doctor?
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Vitality
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« Reply #3 on: October 20, 2013, 12:16:45 PM »
Hellooo, moodyc, and welcome!

I'm very sorry to hear about your husband's frustrations.

Hmm... I'm actually becoming quite concerned with the number of people who are not considering or who are not informed about the Peritoneal Dialysis (PD) option. Please read my comment on this post (look for the comment from Vitality): http://ihatedialysis.com/forum/index.php?topic=29683.0. Please learn more about PD here: http://www.davita.com/treatment-options/home-peritoneal-dialysis/what-is-peritoneal-disease-/a-brief-overview-of-peritoneal-dialysis/t/5483

I wish you and your husband the best, moodyc, and I hope the problems are resolved soon.
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kporter85db
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« Reply #4 on: November 27, 2013, 02:52:10 AM »
Quote from: moodyc on October 16, 2013, 06:29:14 AM
My husband has  been a dialysis patient on NxStage since May.  We went through two months of training. He is very frustrated with the machine.  After three months, he's thinking of going back to in-center because of the alarms that keep going off while he is on the machine dialyzing.  He has a catheter, and we keep getting red 11 and red 21 alarms.  Last night it happened automatically every hour, no matter which way he layed in the bed. We go to his doctor today, and will mention this, to see if we need to get a new machine. I put him on the machine after I get home from work and he does it 5 times a week for 4 hours.

Have you tried reversing the catheter, or slowing down the pump speed?
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May/2010 Sulfa based antibiotics killed my already weakened kidneys, almost
Feb/2011 PD catheter placed
July/2011 Started Peritoneal Dialysis
Nov/2013 Started NxStage 5 days/week

Ken
kporter85db
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« Reply #5 on: November 27, 2013, 02:54:35 AM »
Quote from: Vitality on October 20, 2013, 12:16:45 PM
Hellooo, moodyc, and welcome!

I'm very sorry to hear about your husband's frustrations.

Hmm... I'm actually becoming quite concerned with the number of people who are not considering or who are not informed about the Peritoneal Dialysis (PD) option. Please read my comment on this post (look for the comment from Vitality): http://ihatedialysis.com/forum/index.php?topic=29683.0. Please learn more about PD here: http://www.davita.com/treatment-options/home-peritoneal-dialysis/what-is-peritoneal-disease-/a-brief-overview-of-peritoneal-dialysis/t/5483

I wish you and your husband the best, moodyc, and I hope the problems are resolved soon.

Vitality, what makes you think they have not considered or been informed about PD?
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May/2010 Sulfa based antibiotics killed my already weakened kidneys, almost
Feb/2011 PD catheter placed
July/2011 Started Peritoneal Dialysis
Nov/2013 Started NxStage 5 days/week

Ken
Rerun
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« Reply #6 on: November 27, 2013, 07:56:46 AM »
Welcome, as you can see, lots of help here on IHD.  I hope you find out the problem.  I'm glad you joined us.

Rerun, Moderator    :welcomesign;
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Shaks24
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« Reply #7 on: November 27, 2013, 10:43:32 AM »
Welcome to IHD.   :welcomesign;  I hope your husbands doctor has answers for you.
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Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
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