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Author Topic: Howdy From Greater Cincinnati, Ohio :)  (Read 2994 times)
NDXUFan
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« on: September 10, 2013, 01:11:46 PM »

I am from Greater Cincinnati, Ohio and I live on the Far East side of the metro area.  As for me, my kidneys started the long climb down in 2001 when a primary care physician suggested that I contact a Nephrologist, was not even sure what kind of a physician he was and most of my family is in Nursing.  Then, in Late November in 2006, I had Acute Pneumonia and that is what finally caused my kidneys to fail, acute pneumonia only has a 30 percent survival rate.  I was in the hospital with that illness for 19 days, bill was $125,000 at Mercy Anderson. If you are curious, you do not want that pneumonia, at one point, my chances of survival were less than 50 percent.  Yes, it was hell on earth and I was only 38 years old at the time.  Now, I am on Nocturnal Dialysis, 5-6 days per week, 6 hours per treatment.  When I first went on In-Center dialysis, I thought I had been hit with a baseball bat and I had played many sports over the years and was used to running 6 miles per day, when I was trying to get into the Marine Corps. 
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monrein
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Might as well smile

« Reply #1 on: September 10, 2013, 02:21:55 PM »

 :thumbup;  Thank you.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
skg
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« Reply #2 on: September 11, 2013, 05:09:57 PM »

Hi!

Don't live anywhere near there now (or for a long time), but I grew up in the suburbs of Cincinnati (and have several family members in nursing).

Sounds like a nasty pneumonia. Glad the frequent nocturnal treatment works well for you. Seems like that could be a good option if it is available.

cheers,
skg
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Angiepkd
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« Reply #3 on: September 11, 2013, 08:50:23 PM »

Hi!  I live in Cincinnati, but on the Westside.  I do home hemo with NxStage, but would like to do nocturnal.  My center doesn't support home nocturnal, and they don't offer in-center nocturnal.  I am hoping to receive a transplant around Christmas this year.  My youngest brother is a match and is going through the medical screening now.  Best of luck to you!
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
Rerun
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Going through life tied to a chair!

« Reply #4 on: September 12, 2013, 07:19:51 AM »

Thank you for your intro.   :thumbup;  I hope you continue to do well on Nocturnal.

Rerun, Moderator    :welcomesign;
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