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I Hate Dialysis Message Board
Dialysis Discussion
Dialysis: General Discussion
I'm in the hospital
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Topic: I'm in the hospital (Read 11473 times)
MooseMom
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Re: I'm in the hospital
«
Reply #50 on:
August 06, 2013, 06:00:43 PM »
Don't let any hospital staff make you leave before you are ready. Why on earth would a nurse think a patient would be in the hospital for "too long"? They aren't paid to make those judgments.
Logged
"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
Riki
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Posts: 3408
Re: I'm in the hospital
«
Reply #51 on:
August 06, 2013, 06:18:27 PM »
this nurse didn't want to give me any pain medication this afternoon. Mind you, it's a narcotic, but she offered me regular strength tylenol in it's place. I've grown a tolerance for regular strength tylenol. It hasn't done anything for me in years. I don't know why she thought it would be better. It's not like I was popping the pain meds all day long either. That was around suppertime, and it was the first time I'd asked for any
Logged
Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Chris
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Posts: 9219
Re: I'm in the hospital
«
Reply #52 on:
August 06, 2013, 08:22:30 PM »
Riki, I would complain about her. I had to with one nurse. Also have you asked your doctor to order pt? I had to do that with reccent hospital stay.
Logged
Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
Riki
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Posts: 3408
Re: I'm in the hospital
«
Reply #53 on:
August 07, 2013, 06:05:19 PM »
yeah, and PT was around the other day to check on my walking, since they did slice through those core abdominal muscles. It's a little hard to stand up straight, but I have found that I'm in less pain when walking and standing than when sitting.
Also, tonight, with my mom's help, I went up and down some stairs outside the nursing unit without any real issues, so I'm going to try to nail down the doctor to talk about the plan to go home, since I still have 17 staples across my upper abdomen.
Logged
Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Riki
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Posts: 3408
Re: I'm in the hospital
«
Reply #54 on:
August 08, 2013, 08:16:18 PM »
I'm home, though I'll be back there tomorrow for dialysis
Logged
Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Chris
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Posts: 9219
Re: I'm in the hospital
«
Reply #55 on:
August 08, 2013, 11:27:22 PM »
I hope you are doing ok without more pt Riki
Logged
Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
Riki
Elite Member
Offline
Gender:
Posts: 3408
Re: I'm in the hospital
«
Reply #56 on:
August 10, 2013, 08:04:13 PM »
I have a walker that I'll need to use for the next month or so until the muscles heal up a little better, since I can't stand for very long before I start to get sore. My breathing is almost back to normal, but I'm still coughing a bit. Sleeping in my own bed is like Heaven.
also, having a proper internet connection is getting hard to get used to again. *L*
Logged
Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
cassandra
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Posts: 4974
When all else fails run in circles, shout loudly
Re: I'm in the hospital
«
Reply #57 on:
August 11, 2013, 01:41:10 AM »
Good to hear that you are home hon
Lots of love Cas
Logged
I started out with nothing and I still have most of it left
1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96
still on waitinglist, still ok I think
Chris
Member for Life
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Posts: 9219
Re: I'm in the hospital
«
Reply #58 on:
August 21, 2013, 05:43:45 AM »
Back in hospital. Long story short, went to doc Monday and discussed health issues going on, had labs drawn, went back upstairs to her office, collapsed on her. Sent down to ER at 2:30 pm and waited 12 hours to be seen (long part of story), finally got a room not on the transplant floor Tuesday after 7 am.
Chemical stress test done, labs, x-rays. One problem found and now looking for intial cause to cause this to happen.
Whitley stayed with me till 11 pm Monday when parents came to take her home. She did not want to leave and had to be picked up to get her on her feet.
Bed ridden again, food is being chosen for me for some odd reason and served fish, the one food I told them I would not eat!
Logged
Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
cdwbrooklyn
Full Member
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Posts: 388
Positive Thoughts equal Positive Energy
Re: I'm in the hospital
«
Reply #59 on:
August 21, 2013, 12:13:37 PM »
Sorry to hear that....feel better.
Logged
Dailysis patient for since 1999 and still kicking it strong. I was called for a transplant but could not get it due to damage veins from extremely high blood pressure. Have it under control now, on NxStage System but will receive dailysis for the rest of my life. Does life sucks because of this. ABOLUTELY NOT! Life is what you make it good, bad, sick, or healthy. Praise God I'm still functioning as a normal person just have to take extra steps.
cassandra
Elite Member
Offline
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Posts: 4974
When all else fails run in circles, shout loudly
Re: I'm in the hospital
«
Reply #60 on:
August 21, 2013, 02:56:00 PM »
Oh dear Chris, I'm so sorry this happens now.
Is it your heart?
Good luck honey, and I really hope they'll supply some food you can eat soon.
Lots of love, Cas
Logged
I started out with nothing and I still have most of it left
1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96
still on waitinglist, still ok I think
MooseMom
Member for Life
Offline
Gender:
Posts: 11325
Re: I'm in the hospital
«
Reply #61 on:
August 21, 2013, 04:53:16 PM »
Oh no! What the hell happened? This is rather scary...
I hope they find out soon what's going on. I hate to hear this news.
Logged
"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
Chris
Member for Life
Offline
Gender:
Posts: 9219
Re: I'm in the hospital
«
Reply #62 on:
August 22, 2013, 01:30:39 PM »
Sorry, I thought I posted this in my thread Okarol started from my hospital stay a couple weeks ago.
Heart - undetermined, stress test has to be done again. Cancelled due to high bp during some phase of test
Logged
Diabetes - age 7
Neuropathy in legs age 10
Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
-glaucoma and surgery for that
-cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
- vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection
Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000
Kidney and Pancreas Transplant - December 3, 2000
Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures - Priceless
No two day's are the same, are they?
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