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alicatikins27
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« on: August 12, 2013, 10:54:52 AM »

Hi everyone, My name is Alexandra although my user name is Alicat (my nickname given to me when I was at school). for years I had a lot of urine infections but my renal issues came to a head in October 2005 when I gone off food (unusual for me as I've always been a "chunky monkey") but things got serious when I couldn't even keep water down. I was rushed into hospital and the following day went on dialysis. It turned out that an undetected abscess had burst so poison was circulating around my body. I ended up with both a renal drain to drain the abscess and a nephrostomy line to keep my remaining kidney functioning. Because I had to lay on my back for a month, my Spina-bifida was screaming. If I could have slept upright I would have done as standing was the only way that I was comfortable. :) (I'm greedy I have other health issues) :D  On October 10th 2007 I had my right kidney removed.   Touch wood, I have only had one session of dialysis so am on an almost veggie diet to cut down my meat proteins, low sodium and low phosphate to hold off the dialysis for as long as possible. Sorry it's a long, post, I could talk for England.

Alexandra aka Alicat
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Sugarlump
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10 years on and off dialysis

« Reply #1 on: August 12, 2013, 12:37:41 PM »

Welcome from England  :bump;
I too used to get called Alicat at school so we share something else in common!
Your diet impresses me, tell me more about what you actually eat?
I have often wondered IF I could stick to a veggie diet whether it would improve my blood test results long term but I always struggle to think of things to eat within the renal diet as well as cheese!!!
And I am not sure I could live without bacon!  :waving;
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Rerun
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Going through life tied to a chair!

« Reply #2 on: August 12, 2013, 04:11:42 PM »

Hi Alicat and welcome to IHD.  I too hope you can be free from dialysis for a little while longer especially if you don't like sitting in g chair.

Keep up posted on your progress.

Rerun, Moderator    :welcomesign; 
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UkrainianTracksuit
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« Reply #3 on: August 12, 2013, 06:48:50 PM »

 :welcomesign; and hello to a fellow veggie person. 
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Angiepkd
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« Reply #4 on: August 12, 2013, 07:23:36 PM »

 :welcomesign; alicat!  You have certainly come to the right for support!  It sounds like you have been through a lot, so you must be a tough cookie to sound so positive.  Great job doing everything you can to keep that kidney working!  Hope it continues to hold out for you for a very long time.  Looking forward to hearing more about your journey.  Best wishes to you!
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
Poppylicious
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« Reply #5 on: August 14, 2013, 02:32:41 AM »

 :welcomesign; Alicat!  Lovely to 'meet' you; not so lovely about the circumstances!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
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