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Author Topic: Dialysis patients have to pay to watch TV  (Read 4759 times)
Bill Peckham
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« on: June 06, 2013, 10:05:24 PM »


This seems pretty unfair to me. It doesn't cost the hospital any more if two people are watching TV instead of one, this seems like a case of taking advantage of a captive audience. the hospital's email address is patientrelations@niagarahealth.on.ca


http://www.niagarafallsreview.ca/2013/06/06/dialysis-patients-bugged-by-hospitals-tv-fees

Dialysis patients bugged by hospital's TV fees
By Marlene Bergsma, The Standard
Thursday, June 6, 2013 7:04:23 EDT PM


ST. CATHARINES - Dialysis patients at St. Catharines’ new hospital say the fancy new TV and Internet system is great, but many of them can’t use it because they can’t afford to pay for it.

The flatscreen monitors on flexible arms suspended over each dialysis station offer TV, premium TV and Internet access, but it costs $3 for four hours of basic TV, $5 for premium TV and $6 for premium TV with Internet.

“That’s $100 a month,” said Allanna Kernahan, whose husband, John, visits the hospital for dialysis five days a week.

John Kernahan, a former city engineer for the City of St. Catharines and general manager of the Niagara Parks Commission until his retirement in January 2013, said he has a comfortable pension and can afford to pay for the daily four-hour TV and Internet connection.

But the Kernahans spoke up up on behalf of other dialysis patients who have lost their jobs and are living on meagre disability pensions, John said. “We can afford it, but it’s the principle,” Allanna said.

“People can’t even afford a cup of coffee, and they are sitting in that chair for hours. This is crappy treatment.”

Chemotherapy patients must pay for TV, too, but their treatment eventually comes to an end, she pointed out.

“Dialysis patients are on it for the rest of their lives, there’s no light at the end of the tunnel,” she said.

“You’re on it until you get a transplant, or you don’t,” agreed Karl Poirier, who has been a dialysis patient for 12 years and who spearheaded a petition against the new fees with his wife, Rosemary.

The Poiriers are trying to submit the petition, with close to 70 names on it, to acting Niagara Health System CEO Sue Matthews.

Allanna said the payment system is maddening because it’s a minimum four-hour block that can’t be transferred and can’t be saved.

“A lot of patients fall asleep, but they can’t carry the unused time,” she said. And some patients might want to pay for a shorter period of time, say an hour, but are required to pay for a four-hour minimum.

“It’s just a cash grab for the new hospital,” said Carlos Garcia, whose wife, Faye, receives dialysis twice a week. The Garcias can also afford to pay but are refusing to purchase, on principle.

Charging them “is just so incredibly unfair,” Garcia said.

“Most of these people have nothing else to do to pass the time, and TV is like medicine for them.”

Allanna Kernahan said dialysis interrupts people’s powers of concentration and makes it difficult for them to read.

Poirier said patients were allowed to use the new TVs for free for the first few weeks, “and everybody thought they were great. But nobody said we had to pay for them.”

Poirier said he tried to keep working after his kidneys failed, but dialysis wore him out. He was forced to give up his job and their house, and now they live on Canada Pension assistance and his wife’s part-time wages.

“My pension is $835 a month and rent is $840 a month,” he said.

The hospital’s fees for TV add up to “more than I pay for cable at home, and I get lots of channels.”

Angela Zangari, chief financial officer for the NHS, said she sympathizes with the patients’ complaint.

She said the NHS recognizes dialysis patients are in an unusual situation, and is charging them less than half of what other patients are paying for the same service. It is also giving them discounted parking.

She said the new TV system is meant to provide better options for patients, and the hospital is offering it on a “cost-recovery basis.”

“We are deeply empathetic to the needs of our dialysis population,” Zangari said. “We strive for a positive patient experience and we are all very sad that they are not feeling that right now.”

Zangari said the hospital introduced the new technology as a benefit to patients, but the cost “is quite expensive and we are trying to break even.”

She acknowledged there have been numerous complaints lodged with patient services about the new fees, and senior hospital administration has been meeting to discuss the issue.

“One thing we are looking at is seeking donations to offset the cost,” Zangari said, “from a company or foundation.”

She said the patients’ suggestion to allow customers to carry unused time forward to another day “is an excellent idea, and they have our commitment that our senior team will look at it.”

She said the NHS will also find out what other hospitals do and will be “crunching some numbers.”

The dialysis patients say they are grateful for the discounted parking they receive at the new hospital, because they have to be there so often. But the TV charges still rankle.

“Some people have lost their jobs, have lost their farms because of dialysis,” Allanna said.

“This is just another kick in the butt.”
« Last Edit: June 06, 2013, 10:10:23 PM by Bill Peckham » Logged

http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
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okarol
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« Reply #1 on: June 06, 2013, 11:01:54 PM »

Ridiculous.
What's next? Pay for the upholstered chair? Or bring your own folding chair.
I emailed the hospital.
I also posted on the article in the comments section.
« Last Edit: June 06, 2013, 11:21:00 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
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okarol
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« Reply #2 on: June 07, 2013, 12:10:15 AM »

Another friend on facebook made a good point. Even prisoners in jail get to watch TV for free!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
ianch
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« Reply #3 on: June 07, 2013, 02:30:45 AM »

The new dialysis centres in NZ have free TV for each bay.  Just the basic version, no paid stuff.  Flatscreen suspended from roof with controls on the chair, and headset socket.  I believe all public hospitals are being upgraded with TV but its $5 per day.  I'd probably pay that if i was in hospital but not right for dialysis centres.     

The chairs themselves are pretty fancy. Chair-to-bed type controls so you can change positions whenever.  As fancy as they were I found them hard on the back for 4 hours and actually preferred the bed.

As I am now HomeD and asleep for the whole 8-10 hr session one of that worries me anymore  hehe  Lines are locked in tight so I can roll from back to side and reverse while asleep.

       
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Ian Chitty
ESRD suffer, IT specialist, and business owner
(<2yrs) 1Y in-center, 9 months HomeD, 4 weeks tourism dialysis (Philippines/Singapore)

https://kiwimedtec.com
The aim of KiwiMedTec is to develop online solutions and partnered networks for dialysis patients, to make coping with kidney disease a little bit easier.
okarol
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« Reply #4 on: June 07, 2013, 09:44:55 PM »

I received a response from Niagara Health: Thank you for your feedback.  I will continue to advocate for all our dialysis patients.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
galvo
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« Reply #5 on: June 07, 2013, 10:46:38 PM »

Bastards!
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Galvo
okarol
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« Reply #6 on: June 11, 2013, 10:15:30 PM »

My comment: It's heartwarming to read the update. http://www.niagaraadvance.ca/2013/06/11/dialysis-patients-get-tv-for-free
It says a lot about the care the patients at Niagara Health can expect, because their voices are heard.


Local News
Dialysis patients get TV for free
By Marlene Bergsma, The Standard
Tuesday, June 11, 2013 5:40:25 EDT PM

ST. CATHARINES - The Niagara Health System is doing a U-turn on charging dialysis patients for TV.

“We heard from the people we serve that this is an issue for them,” said Sue Matthews, NHS interim president and CEO, announcing the new policy.

The patients are shocked.

“Are you kidding?” said Karl Poirier, a dialysis patient who spearheaded a patient petition with his wife  Rosemary. “You are kidding,” he said, when told of the NHS decision.

“Oh my gosh, that is wonderful. That is great,” Poirier chortled when the news sunk in. “I couldn't have dreamt for a better answer. I couldn't have hoped for a better outcome.”

Allanna Kernahan, wife of dialysis patient John Kernahan, was equally amazed.

“Are you kidding me?” she asked. “That is so wonderful, that is so great.”

After The Standard's story about the TV fees was published Friday, the service was free in the dialysis unit on Saturday morning, Poirier said.

Social media response to The Standard's coverage was overwhelmingly in support of the dialysis patients getting service for free.

Poirier said patients were told Saturday that the hospital was evaluating the issue and would be offering the TV, Internet and phone service for free in the meantime.

Matthews said the senior team met Monday and agreed the service will continue to be free for dialysis patients, effective immediately.

“We recognize they are a unique population,” Matthews said, “in terms of the frequency with which they come to the hospital.”

Matthews said once the NHS realized how upset the patients were, “we looked at what other hospitals are doing” and decided to stop charging.

The NHS will continue to offer the TV and internet service to other patients at cost, and will be trying to recoup the $47,000 annual cost of the service to dialysis patients “from somewhere else,” she said. “We included it in our revenue projections, so we will be looking in to every avenue” for alternate funding.

The Poiriers and the Kernahans had told The Standard that many dialysis patients can no longer work and are on fixed incomes. Their illness means they are in the hospital for four-hour stretches as many as five times a week. They can't move because the dialysis machines are extremely sensitive. Many are too sick to read or focus on other tasks, and rely on the distraction of TV to pass the time.

But the $5 daily cost for TV and internet service was too much for many to afford, they said.

Matthews agreed dialysis patients are unlike any others, because they have to come to the hospital so often, and for so long. They are the only ones who will be getting the free service. Oncology patients, who also come in for chemotherapy, will continue to be offered the service for a fee.

“Oncology patients have a defined period of treatments, whereas dialysis is ongoing,” Matthews explained.

Matthews said the NHS wants to be responsive to patient concerns.

“We clearly heard their feedback, that's for sure,” Matthews said. “We are trying very hard to be the hospital people need us to be.”

Poirier said the NHS decision makes dialysis just a bit easier to take.

It also changes the way he feels about the NHS.

“It really shows that someone listened,” he said. “It's not falling on deaf ears.”

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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Bill Peckham
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« Reply #7 on: June 12, 2013, 09:51:33 PM »

Social media made a difference. Nice to have a good outcome every now and again
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http://www.billpeckham.com  "Dialysis from the sharp end of the needle" tracking  industry news and trends - in advocacy, reimbursement, politics and the provision of dialysis
Incenter Hemodialysis: 1990 - 2001
Home Hemodialysis: 2001 - Present
NxStage System One Cycler 2007 - Present
        * 4 to 6 days a week 30 Liters (using PureFlow) @ ~250 Qb ~ 8 hour per treatment FF~28
Rerun
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Going through life tied to a chair!

« Reply #8 on: June 12, 2013, 10:09:11 PM »

I agree with Galvo! 

                        :yahoo;
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